i am new here ...hello everyone

tahani · Posted: Tue May 27, 2008 10:46 pm Post subject: i am new here ...hello everyone

hello everyone
am so glad that i found this web site , i feel am not alone when i see all of u here has lupus & know all about it, i dont know what to say i am overwholmed, i am 39 years old, divorced female, with a 2 year old boy, he is gorgouse, he fills my life with joy & laughter, i asked for the divorce & moved to my mom's house so family can take care of us both as my husband was selfish & didnt realize my pain& how ill i am , ofcourse he got remarried again in no time , i 'v been diagnosed a year ago after a long fight with the disease & as usual docotors took so long time to figure it out ...

Rastagirl · Posted: Wed May 28, 2008 11:25 am Post subject:

Hi Tahani and Welcome...... Very Happy

You've found a great place for understanding and support. I'm sorry you're feeling so overwhelmed. This illness can definitely do that.

You've been through a tough time, sounds like. Sorry about the divorce and stress involved in the relationship. It's good that you have family close by to be supportive and share their home.

What a joy that you have your little boy. Two years old is such a fun age. I have a boy and a girl, and they, also, are my joy in this life!!

There will be many others along to welcome you soon. You will find a great group of understanding, compassionate people here with knowledge to share and support when you need it.

Just wanted to say hi and send you a cyberhug all the way to Cairo, Egypt!! Smile

Fondly,

Lori Very Happy

sits_inthe_corner · Posted: Wed May 28, 2008 1:13 pm Post subject:

Welcome tahani

I'm glad you had a supportive family to turn to. Have the doctor's started a treatment plan for you. I hope you have some help to manage you pain.

Saysusie · Posted: Thu May 29, 2008 6:36 am Post subject:

Hi Tahani;
Welcome to our family Laughing

It is a blessing to have a supportive family, especially in light of the stress you've been through with divorce. Stress can be very detrimental to this disease, so I am glad to hear that you are no longer in such a stressful situation and that you have your beautiful 2yr old son to bring you joy.
This is a very supportive family here and you will always find someone here when you need help, answers, comfort or just to vent. I'm glad that you found us and that you decided to join us!

Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It!

Oluwa · Posted: Fri May 30, 2008 6:48 am Post subject:

Hi Tahani...

Welcoming you with open arms, Tahani...

I too am happy you put your child and yourself first, and removed yourself from a stressful situation. Lupus (IT) thrives on stress...

Say it all, one paragraph at a time...it will help eliminate your overwhelmed feeling...

We're here for you..hugs.
Oluwa

mnjodette · Posted: Sat May 31, 2008 1:02 pm Post subject:

Welcome, Tahani. Your supportive family can make all the difference for you in coping with lupus...I'm so glad you have them...AND your lovely 2 year old son! What a blessing! I'm glad you found us, too, and I think you'll find lots of support here as well.

Jody
_________________
"Always laugh when you can. It is cheap medicine." Lord Byron

tahani · Posted: Wed Aug 06, 2008 7:09 pm Post subject: To Dear Lori

Dear Lori,
i meant to write u sooner , ur kind welcome letter made me smile , tx for ur kind words & tx for ur support
hope ur kids are doing fine
how old are they ? are u sick to>? how sick ?plz write to me
Tahani

tahani · Posted: Wed Aug 06, 2008 7:12 pm Post subject: Hello

thank u for stopping by & take the time to write to me
my doctor is doing her best , but am still in pain , i refused to take cortison, but still the pain in my legs ,thighs, hands , dont go away , and i have this difficulty breathing , it doesnt seem to be solved
am always tired
what shall i do ?
Tahani

tahani · Posted: Wed Aug 06, 2008 7:16 pm Post subject: this is a late reply

Dear saysusie

tx for ur supportive words , am glad that i finally found such a support group , ppl who wud understand
its a very ugly disease, its forces u to stay home in bed , very tired , u cant eat what u like any more , even walking is hard now 4 me , weak muscles

how a relief , hopw am not a burden thank u
bye
Tahani

tahani · Posted: Wed Aug 06, 2008 7:20 pm Post subject: Hi Oluwa

i fdeel when am visiting this web site , as if am with family
u warmth my life
thanks for the hug
i really needed
and u r rit , i am trying to stay away from all the stressful things in life in order to survive to be able to raise my poor little child

regards

tahani · Posted: Wed Aug 06, 2008 7:24 pm Post subject: Dea Jody

Thank u sooooooooooooo much , i really appreciate every word i recieved , thank u very much guyz for all the support , 4 emailing , 4 being there
i need all the advices & the support
and u r so true , my son is a blessing

Tahani

rob · Posted: Wed Aug 06, 2008 7:44 pm Post subject: Hello tahani

Hi tahani,

I just wanted to say hi. I'm glad you are here, and I'm glad you are finding people who undersatnt. Welcome.
_________________
It's better to be considered a has-been, than a never-was.

is_dfaith · Posted: Thu Aug 07, 2008 12:19 am Post subject:

Hi Everyone,

My name is Donna. I have Lupus plus Arthritis. The thing I hate about this disease is the pain. I have the lupus that affects my joints so I have trouble walking. I can't bend my legs to well either. I don't know about the rest of you but I will stay seated for a long time because I don't want to go through the pain of getting up. However, if I sit or stand along time I get so stiff the pain is worse. I am glad to be around others who have the same problems.

DONNA Crying or Very sad

laurid8967 · Posted: Thu Aug 07, 2008 5:09 am Post subject:

Welcome Donna -
Most of us here also suffer from the joint pain...it really is debilitating at times, I know. Are you on any medication for it? Plaquenil? Prednisone? Within two days of being on prednisone, my joint pain was down to a 2 from a 10...it REALLY helps as it reduces the inflammation that causes the pain. Plaquenil will also help, however, it does take some time to work...
Glad you found us...you will find nothing but accurate info here given by knowledgable and compassionate people..
Lauri
_________________
God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference...

Saysusie · Posted: Thu Aug 07, 2008 7:20 am Post subject:

Hi Donna;
As Lauri mentioned, most of us also suffer from the pain and muscle weakness and (for those of us who are older) the excruciating arthritic pain on top of all of the other pains Crying or Very sad

So, yes, we do understand and we know what it is like to have to make accommodations due to our pain.
I am happy that you joined us and you will find that everyone here is very open and willing to share! You are in the right place to know that you are not alone.

Tahani;
There is no such thing as being a "burden" here! All questions are equally important to us and everyone's journey, with this disease, gets equal amounts of attention and care! So, stay with us and never worry about being a burden.

Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It!