UVA1 Phototherapy

debartolo · Posted: Fri Jun 20, 2008 12:19 pm Post subject:

Oluwa - all i'm asking, nay, suggesting, is that you read the material.

letters, etc., i've been doing for 4 years & i've had an effect - not all good i'm afraid -- for example, due to the book, last year the FDA changed it's regulations concerning the marketing of sun tanning equipment - now, if a sun tanning device has ever been used by a medical professional in any setting for a medical purpose, it needs to be reviewed as a medical device before marketing....when i wrote the book, i could have sold this stuff as sun tanning equipment & been done with it.

(i've also pitched this story to several major news organization in the country - ABC News, 60 Minutes, New York Times, etc --- the only positive thing that i'm aware of that has thus far come of that effort (other than a lot of top health editors now know about it), is that the NYT's now includes UVA1 phototherapy in it's health guide & describes it as a 'promising' lupus treatment ...i'd give you the link to their guide, but...)

which reminds me - and this is very important - when i wrote the book i was under the mistaken impression that this light method might never get approved by the FDA for a host of reasons...i was fortunately very wrong - it's a lot closer to FDA approval than i thought...it's not going to take many more successful research studies before a medical device manufacturer applies for approval - thank god for the profit motive! 'cause that's what it usually takes to get things done in the good old US of A.

...have a very nice weekend - i'll be back late next week ... my b-day is on tuesday, and as tradition dictates, the celebration starts today @ 5 pm & runs through next wednesday...see ya.

Oluwa · Posted: Fri Jun 20, 2008 12:28 pm Post subject:

May your birthday wish come true....

I will read...next week...
Keep well...be safe celebrating your day...
Oluwa
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debartolo · Posted: Fri Jun 27, 2008 2:51 am Post subject:

thank you oluwa - as a matter of fact one of my birthday wishes did come true -- my wife was able to come home early from an out-of-town business trip & at least spend a little time with me.

looks like i can post those links now:

you can read the book's introduction, "The Basics," as a PDF here.

http://www.hydeparkmedia.com/lupus-intro.pdf

I've posted the rest of the book (all the important chapters) on my own server as password protected PDFs.

All you need to read this material is Adobe Reader, the URL links & the password -- all of which you'll find here.

http://www.hydeparkmedia.com/LUpdfs.html

i'll do my best to check in at least once a week to see if i can answer any questions concerning this material.

best....

Oluwa · Posted: Fri Jun 27, 2008 2:55 pm Post subject:

Anthony ...well, good luck on this endeavor, whichever way it is taking you.

A bit interesting..though, well, I can't say the chapters blew my dress up but I can now say I am aware. I heard, I read. Thanks, Anthony.

Be well.
Oluwa
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debartolo · Posted: Fri Jun 27, 2008 4:44 pm Post subject:

as long as you're now aware this method exists & that it works, my work is done oluwa.

& for the record just in case my wife drops by: blowing up your dress never crossed my mind.

Oluwa · Posted: Sat Jun 28, 2008 6:42 am Post subject:

P.S. I don't wear dresses anymore.
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Gingerbread Kat · Sea Monkey Joined: 28 Sep 2008 Posts: 13

Good Topic.

My son-in-law-to-be owned a tanning business (since sold). He spent a fortune to put a Non-UVA tanning booth in. It cost him like $10,000 for it. He also had that spray-on-tan; which is off topic but he, himself, wanted to advocate "safe tanning".

*I just read the links posted about this theory*.

Now; I am not sure if that booth is the same as the UVA1 as posted in the book. My daughter's wedding was coming on, and she had a college break and was working at the tanning place. So she let me try the booth.
All I can say is I've never felt so well in my life and her wedding! I was pain-free and it was the most wonderful experiance!

I am VERY sensitive to sun but my (now) son-in-law, who was actually a Pharmacist at that time and had some medical knowledge, felt so sure it wouldn't hurt me. And it didn't. Very Happy

It may have been curing my S.A.D; but my Lupus went into the best remission ever.
Placebo Effect?

He sold the salon as it was a pain in the you-know-where.

My daughter, who also has SLE, is now a Dermatologist. I'll have to check with her and see if they do anything with this. She has not had many flares as she (learned at her Mother's knee) takes very good care of herself, what she eats (only organic), excercises and all that. She always, always uses a strong sunscreen and is adamant about that with her patients.

BUT those booths are expensive! And expensive to use (unless you have a son-in-law who owns one). They aren't like the 'tanning beds'; thios one you stood up in and I didn't even get a tan out of it #Puppy dog

~GingerKat