Does anyone know if these are symptoms of lupus?

cheryl_v · Posted: Tue Jul 22, 2008 10:45 am Post subject:

Hi Steve, I do understand the frustration. Your glad, but so upset too because you know somethings wrong. It seems, from what I've read, the test results often come back normal when ill and abnormal when feeling good. Go figure Confused

. I had an abnormal test 2x almost 5yrs ago, everyone since then has been nomal. Rhuemy's are often recommended because they can run more test than a primary doc is allowed, so hopefully you'll get some answers. They also know little things to look for as well. Beware, first app. are generally 2-3 months away with paper work. Had another new rhuemy doc myself, took 3 months for first app. to be seen. Good luck.
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Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

Sparky120166 · Posted: Thu Aug 07, 2008 4:00 pm Post subject: Symptoms

I actually have numerous autoimmune issues. I wanted to tell you that you should see a rheumatologist. At such a young age it is uncommon to have so many issues. About your hands. I also had that problem. They would look like a dead persons hands. I got sores on the fingertips that would not heal. I had surgery on my hands 3 years ago. Basically the Dr. did a by-pass and rerouted the viens in my fingers, palms and wrists. It was very successful. If you do not get treatment for the sores you can lose fingers. I have been sickly all my life. At 21 I was in ICU with renal crisis. I'm 42 now I take 14 medications daily. I have chronic pain, chronic depression, osteoarthritis, degenerative disc disease (7 surgeries on back). ETC, ETC. At this point I have been on disability for 2 years. My husband does not understand my "Invisible Illness". I found a great site that really helps me when I'm down. It is called butyoudontlooksick
and there is a great story called the spoon theory. Share this with your mom. It may help her with her personal battle and yours. Please e-mail me anytime. I'm a Retired Nurse and seem to have been blessed with a wealth of usseless information.

Sparky