I go something like this.....

laurid8967 · Posted: Wed Jul 16, 2008 5:32 am Post subject:

Thanks for keeping us posted....Hope you find some relief soon!!!!
Love and prayers -
lauri
_________________
God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference...

Oluwa · Posted: Thu Jul 17, 2008 12:33 pm Post subject:

PT was wonderful..again...relief is here...

Rash...Diagnosed as Asteatotic eczema. Humm I wonder about the diagnose as being correct. Mine doesn't look the pictures, I am very tender loving to my skin. Maybe it is in the early stages before it goes nuts and cracks up all over the place....

Prescribed Locoid Lipo...steroid cream. Now how do I get it on my scalp... Shocked

Sigh...I feel cruddy on the outside, laughing.. feeling great on the inside....
Oluwa
_________________

cheryl_v · Posted: Thu Jul 17, 2008 6:45 pm Post subject:

Hey Oluwa, sent you a pm. Glad your PT app. went well. Glad your feeling well on the inside. Hopefully the itchies will soon go away Very Happy

.
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

Jenfrombill · Little Guppy Joined: 18 Jun 2008 Posts: 36

I was so surprised by the very first post in this thread... some of it could have been my own thoughts. I go Tuesday and talk to a Rhumetologist. I have posted on this site earlier this week (question about rash and symptoms)- I have positive ANA, Lupus Anticoag, CRP and blood in my urine. I am still thinking the rhumetologist may say, I think you're okay. I am so used to being told everything was fine, just repeat the test or basically it is all in my head from my primary, I am not sure I can handle being told I may be sick from someone else. But the more I read, the more questions I ask, I realize... it could be. Thanks for a great site. And although I am not diagnosed with it yet, and may not be, I will continue to check in on the posts and pray for everyone. And if it I get diagnosed, I have a place to go. Very Happy

Oluwa · Posted: Fri Jul 18, 2008 10:05 am Post subject:

Jen,

That was me, over a year ago...the thread starter. I've come along way if you read more of my journey on this thread...I felt I was pretty much done with living..with IT.

Know, you have a place to go without a diagnose too...here. Everyone needs support in many aspects of their lives. Lupus or not.

It does help to have someone who understand while you do the tango trying to get a diagnose...

Just make sure you voice all your concerns to your doctors. Ensure your symptoms are being treated. One doesn't need the diagnose to receive the care for Lupus....

Read here, read books that way you are more active in your care, your diagnose. I know what it feels like to be vulnerable, uncertain, afraid to question your doctors, waiting for directions, leaving an appointment more confused. It hurts..I have learned to be a big part of my care, sit up front and not in the back seat. That is the best advice we can anyone...ride up front..

Enjoy this day..hugs,
Oluwa
_________________

cheryl_v · Posted: Sun Jul 20, 2008 6:23 pm Post subject:

Hi Jen and welcome. Glad you found this place. Oluwa is such a great insperation, you'll love her inputs. This thread she has gives me hope of improving my well-being. I've read thru most of it, and realize all the ups and downs many people have. Its not just me, and others really do understand. As Oluwa said, no dx is needed. Stay and chat, or vent. Whatever your fancy for the day Smile

. Good luck with doc appointment. Come back often.

Hi all, went to nephews wedding. He looked so nervous, it was cute. His bride, never met until then, was a beautiful girl. I hope she's as beautiful on the inside as the out. Lil miss decided to be the poster child for "the terrible 2's". Hubby had to take her out during the ceremony. We had to take turns during the reception as well. It was so hot too. We ended up leaving after an hour, she's normally so well behaved. No one in my family hardly visits, and hardly tell me of kids birthday parties. So they were complete strangers to her and she freaked. She doesn't like being in places with lots of people, much like her mother. All in all, glad we went. My nephew gave me a hug and said he was glad we made it, he's so sweet. I'd do it again for that hug, they grow up so fast. Hard to believe 20 years ago he was laying on my mom's couch sleeping so sweetly, me watching him for her.

Now just resting, have a mild headache from bright lights yesterday. I even had my sun glasses. I swear my eyes are getting more sensitive. My kids and I took a long walk in the shade today, then a dip in the pool. It was fun, headache or not. Why is it we need so much recuperation after doing things? It can be so annoying, so tired and defeated feeling. Oh yeah, shingles is finally going away Very Happy

. I only have pink spots and mild sting feel left. Weird numbness gone too, yipee.

May we all have a good week Very Happy

.
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

Oluwa · Posted: Mon Jul 21, 2008 1:02 pm Post subject:

CV...

I've been feeling a bit pooped myself...drained after polishing my hardwoods. It is a huge area to do,about 2000sf but cripes just swiping, dusting then polishing
Shocked

Wear those sunglasses while on the PC..will help with headache and eye ache. I do that a lot of the time. An old pair near my PC always...Maybe you have IT or Sjogren's coupled with your Fibro..ya think...

I was quickly diagnosed with FMS the last time I had seen the RheumBA. Is FMS an accumlative disease like IT? I can't remember what I read...then if I do remember is my recall accurate? Hummm..

My rash, eczema, crud, skin rot.. is gone...I disagree with my doctors diagnose. I think it was just a reaction to swimming with a T-shirt on and not rinsing the shirt out after the first time. Usually I change up shirts and suits each time. Then my husband was saying I didn't shower one night because I was too..ah pooped. And then too it went away after I applied the prescribed steroid cream rapidly...poof gone. So eczema...nope.

I am just surprised why the rash didn't respond to my home therapies. I felt like a breakfast meal with the oatmeal flakes drying on me..so heavens knows what it really was, I am grateful it is gone, gone, gone.

Heat warnings have filled our TV airwaves. There too? I've acclimated so much to the climate here, heat doesn't bother me. I swam around noon today, usually I do early morning or evening but I was so exhausted I thought this would help get the oxygen flowing it did for a spell...

I think I am flaming...start of a flare. Or just waning, IT's teasing me. I have felt like a little turd lately...dull, bored..just doing the movies, TV, therapy, sleeping since summer began. Even Hershey's Plain bores me..yawn. I need a vacation from this leisure life, eh..

Still uncertain as to where, when the UP...if my Dad-in-law is coming from Nigeria...

Thank you for the sweet compliment...

Hugs...be well today..
Love,
Oluwa
_________________

cheryl_v · Posted: Mon Jul 21, 2008 6:28 pm Post subject:

Hey Oh, think it could have been a possible allergic reaction to pool chlorine? Its doesn't happen often, but it does. When in water it normally will not irritate the skin. When left in clothes to dry, sometimes the chemical changes and skin gets irritated. Sometimes it may cause a rash. These are hard to relieve since the source was a harsh chemical. Always rinse body and wash clothes. I have experiences with allergies, personal and others.

I do have an old pair of shades, I'll give it a whirl. I do think I have something else, I'm sure FMS can not be causing all this. Needless to say, I too am still learning about FMS. I'm not much help there.

Its very hot here too, I don't watch tv hardly, so not sure of any reports. I go out a lot too, so don't really notice much. We are used to the heat, always hot and humid in the tropics for 8 months of the year. These 3 summer months are always the worse.

Your welcome for that. Try a chocolate truffle, spruces up my bored days of my hershey not helping.

My day has been long too, dragging. Having trouble too, see my post on jaw pain. What a day, you too I see. May we both feel better soon Very Happy

.
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

NoodleMom · Show Poodle Joined: 09 Nov 2007 Posts: 272

Hi ya'll
How have ya all been?

Oluwa, glad your rash is gone. That sounded like it really was a rough time. Missed while you were gone. You polished all the floors. Oh my. So can ya now run and slide across them. Thats what my kids would do when we had wood floors. The house we are moving to has wood floors so Im sure they will be at it again.

Cheryl, Im sorry that you are dealing with the sun sensitivity. It hurts my eyes alot too. Then I get a headache. Its not so bad yet tho for me. Yea try the shades...cant hurt. Doesnt sound like FMS to me.

No fair talkin chocolate now that I have had to stop eating it. IBS....sucks ya know. Oh I love chocolate..eat it drink it oh man. Oh well canteloupe is good too.

I am having my surgery tomorrow am and I really aughta be sleepin now but ya know how that goes. Sleep is a big evader right about now. I fell down the stairs this morning. My leg gave out on me. I dont know if it was my hip or knee. Been having some difficulty with them as of late. I am a little anxious about this surgery.
Just put my little guy back in his own bed. We had some loud thunder and lightening tonite. He is afraid so whhen it storms he comes in our bed. He is gettin so big now that it is a bit(lot) crowded.

Well I really need to try to get some sleep so I can wake up just to go back to sleep for my surgery.

Kasey

cheryl_v · Posted: Tue Jul 22, 2008 5:07 am Post subject:

Oh Kasey, you poor thing. Are you ok? Didn't cause more pain did it? What surgery you having done? Just can't remember, know I read it somewhere I think Confused

. Good luck and best wishes.

I feel silly wearing shades in the house at my computer Embarassed

. It is helping though, eyes are more relaxed feel.
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

cheryl_v · Posted: Tue Jul 22, 2008 5:11 am Post subject:

Kasey, forgot: aren't you pregnant? Baby ok from fall? Surgery not going to harm the baby? Did I remember right, or was that someone else?
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

Oluwa · Posted: Tue Jul 22, 2008 5:14 am Post subject:

Hey CV...

Our pool is a saline pool...where the salt is converted to a chlorine base through a cell. We don't mix chemicals. I don't know if it makes a difference in the chlorine composition. But it is supposedly safer to the body..and our eyes do not get red. Actually after I swim my skin feels so soft...and my hair feels silky.

I usually always wash my clothes but on a very few occasions I haven't because of being tired and cold..ugh.

You are probably right.. I do believe something with the water, the T-shirt...residue detergent something triggered the rash and is not asteatotic eczema.

I too have always had sensitive skin...from metals, to cosmetics, to food...from bee hives to rashes.

How's the jaw this morning? All done with the dentist, still waiting on your permanent crowns?

Kasey...Thinking about you today..surgery day. Soon those fibroids and menses will be yesterdays news..wishing you wellness.

When we first moved in and I wasn't flamin I use to skate about the house in my socks...it has been awhile since I did the ballerina leaps and twirls..ugh...

Happy Day..
Hugs,
Oluwa
_________________

cheryl_v · Posted: Tue Jul 22, 2008 6:56 am Post subject:

Hey Oh, better today? Not to wiped out I hope. Maybe detergent after all, sometimes detergents don't react well with salts either. I forgot to change after beach one day, skin was aitchy and irritable. No rash, forgotten to change before and never happened. My detergent was "new and improved cleaning power", so we figured new chemical change. Got another brand, so far so good. I have sensitive skin, but tough. Needles for blood work doesn't poke thru well. They said it reacted like leather, but looks and feels soft. Go figure Laughing

.

Jaws about the same. Dental work's on hold, already maxed out. The teeth are paid for, but the charge it'll be for the work is not. So we're trying to make extra money on the side to knock the bill down. Cost over $1,000 for the entire deep clean I had done. $268 per quad, yikes Shocked

!! All in good time. Made new signs for advertising the day-care. Decided to paint them pale pink, with bold-black letters. They really stand out against the green back-grounds. I put them in front of shrubs and plants in the neighborhood to help them stand out. Hopefully some calls soon.

Hows your end today?
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

NoodleMom · Show Poodle Joined: 09 Nov 2007 Posts: 272

im home now. Im on perkoset and had two shots of demoral.....flyin pretty high here.
I
m okay from the fall.Just bruised up my toes a bit. However even if they do hurt I wouldnt feel it as Im feelin no pain right now.

No Im not pregnant, must be someone else you are thinkin of.

My surgery was a d&c, uterine ablasion and hysterscopy. I go something like this:(fits real good now Oluwa) I lay down to try and sleep. I see pictures in my head but cannot remember them. I feel like I am asleep and then something startles me and I do wake. very odd feeling. Guess its a bit of dozing with odd pics in my head.

Thanks for thinkin of me, if ya think of it and would be willing to pray (TMI time again)please will you pray that I could go pee. I had a cath in and im swollen down there and so I am having a little trouble with that.

cheryl_v · Posted: Tue Jul 22, 2008 10:35 am Post subject:

I'm glad your home fine Kasey. As silly as it sounds, I did say a prayer for you to pee. I've had a cathader myself twice, totally understand. Sorry about mix up, realized who I got you mixed up with and she's moving too I believe.

Rest my dear, may the weird pics leave you alone and let you rest. All went good I assume? Check in on you later Very Happy

.
_________________
Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)