Temperature Sensitive

laurid8967 · Posted: Fri Jul 11, 2008 5:40 pm Post subject:

No problem - You know, thank God we can all laugh about how clueless our doctors are, but in all seriousness - something has to be done. I dont understand how SO MANY PEOPLE could have experienced the SAME THINGS, yet they are considered NOT to be symptoms, or "in our head"...I just dont get it.
There is a desperate need out there for some research. I have read that its difficult because no two patients are the same (diff symptoms at diff times, etc), but c'mon...there are ALOT of people with this disease!! They should know MUCH more than what they do. OK, Im getting angry...lol. Maybe thats God's plan for me...to help fund research for this craziness...
Maybe time for beddie bye for me!! lol
Good night friends...
Lauri
_________________
God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference...

AnnMarie · Little Guppy Joined: 02 Dec 2007 Posts: 39

Hi,
Yes I have raynauds also,but 13 years ago when I first had problem with my immune system I would go from hot to cold. It would be 10 degrees outside and my work partner would have to stop the car so I could get outside and cool myself down. It was as if my internal thermometer was bouncing from high to low. My doctor could not give an explanation for it.

Now, I just have the coldness in my extremities. Not the severe extremes of hot to cold. Even though it is summer where i live, if my feet get cold, the only thing I can do to stop the chill is to take a warm shower. If I do not, they get numb and it is hard to walk.

Wishing you wellness,
ann

Faith · Cobra Joined: 25 Sep 2007 Posts: 461 Location: California

Hi Swear,

I was diagnosed with Lupus 2 years ago, then Fibromyalgia a year ago last October, Sjogrens this last February, recently neuropathy (cold feet all the time) and now Antiphospholipid Syndrome this month Sad

. Lots of headaches/migranes, sensitive to white computer screens; my eyes hurt, and lately lightheadedness. I experienced Raynaud's this last December; toes and fingers tingling and then numbness. Putting them in warm water scalded them.

The cold is miserable for my fibro, and the heat is miserable for Sjogrens and Lupus, and I feel like Rob. I am walking in a desert thirsting for water and can't seem to get enough, overheated, red faced, can't cool down at all. Sun causes headaches and my body feels hot, sweat like there is no tomorrow. I don't think there is really a happy medium; unfortunately.

My rhuemy stated that once you have one auto-immune, you have a 40-60% chance of gaining another. It's not fun by any means, but you just have to keep on going. Though admittedly, I am running in slow mode with no energy. I feel for those on this panel that have to deal with the humidity; we have some but not probably not nearly what the south and eastern states have. You are not alone, there are a lot of weird things that pop up with Lupus and associated auto-immunes.

Take care,

Faith Laughing