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PamelaJ Not So Newbie

Joined: 29 Jun 2008 Posts: 7
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Posted: Fri Jul 11, 2008 8:45 pm Post subject: Red spots on skin & new diagnosis?? |
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Hi,
I have been getting red spots on my arms. Some are very tiny, & some are larger. They look just like blood, but it is under my skin. They last for a few days and fade and leave a scar! Broken little blood vessels or what?? Anyone have these or know what is going on? I am currently on plaquenil, very low dose prednisone (only 2 mg - Doc is tapering me off) and Ibuprofen. I went off Cellcept 4 months ago. My new rheumy thinks I am in remission (according to my labs, only thing elevated is my DsDNA). I thought remission meant NO symptoms...?? I was under the care of a rheumatologist for almost 7 years and he gave me a diagnosis of Sjogrens with an overlap of lupus, now this new doctor changed the diagnosis to Undifferentiated Connective Tissue Disease.
Pam |
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laurid8967 Rabid Pit Bull


Joined: 03 Jun 2008 Posts: 407 Location: Quincy Ma
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Posted: Sat Jul 12, 2008 5:57 am Post subject: |
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Hi Pam,
Im not sure about the bumps, but that is the second time in as many days that Ive read someone was RE-diagnosed with something due to the bloodwork being better. Being on meds can improve the bloodwork, I believe, so why change the Dx?
Is there a conspiract out there to Dx as LITTLE people as possible with lupus? I would not be comfortable with a doc telling me I DIDNT have something after so long, and saying I had something else...Saysusie? What do you think?
Pam - I hope you get some answers soon, honey...
Love Lauri _________________ God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference... |
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NoodleMom Fierce Poodle

Joined: 09 Nov 2007 Posts: 275
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Posted: Sat Jul 12, 2008 12:16 pm Post subject: |
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PamelaJ Not So Newbie

Joined: 29 Jun 2008 Posts: 7
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Posted: Sat Jul 12, 2008 2:16 pm Post subject: |
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Thank you, Lauri. Sometimes I start doubting myself and I hate that! I wish my doctor had not moved away.....
Thanks for your support!!!
Pam |
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Oluwa King of the Jungle


Joined: 23 May 2007 Posts: 1874 Location: SC
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Posted: Sat Jul 12, 2008 3:40 pm Post subject: |
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Hello Pamela...
I think I have the red dots same as you. Broken capillaries on the surface of the skin. Mine look like pin head size cherry jell-o spots. I have them about my body, no generalized area.
On my thigh a few.... forearm, chest, breast...
Today I am plagued with diaper rash about my whole body...I look like a flaky pie crust. Nails cut to quick...
Jell-o, pie crust...whipping cream? Anyone?
L.,
O _________________
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laurid8967 Rabid Pit Bull


Joined: 03 Jun 2008 Posts: 407 Location: Quincy Ma
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Posted: Sat Jul 12, 2008 4:01 pm Post subject: |
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I have MAJOR broken capilleries - everywhere, even my face. But its not in one really localized area its all over the place, lik ou said Oluwa.
Ill pass on the Jell O tonight...Ive been eating ice cream EVERY NIGHT this week...and not a little, either!! That and the prednisone and I should look just beautiful soon!! lol
OMG - it brings me so much pleasure...I cant even put it into words...
Pam - NEVER doubt yourself...we know our bodies, and, really, who in the world WANTS to feel like this?? I know there are some crazies out there who need attention, but not that many!!
Always follow your gut (no pun intended) when it comes to your health. I gave up and for three years - lay sick in limbo - all the while I could have been getting treated if I didnt doubt MYSELF. Please dont make the same mistake I did. Be persistant!! Its YOUR life, not the Docs!!
Take care, honey
Lauri _________________ God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference... |
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Jax812 Not So Newbie

Joined: 21 Jul 2008 Posts: 8 Location: Pennsylvania
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Posted: Tue Jul 22, 2008 7:18 pm Post subject: |
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Pamela,
They could be petechiae - caused by a low platelet (they clot your blood) count. My platelets dropped to 3,000 (I think a normal number is like 150,000) in 1997. I had reddish-purplish dots all over my body. It's like bruising under your skin. My gums also bled when I brushed my teeth, even when I brushed gently.
You should get blood work done. Mine resolved with a round of prednisone.
Jackie |
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