Flourescent lights...

Oluwa · Posted: Wed Jun 25, 2008 6:10 pm Post subject:

Hi Razzle...

The lighting does....times I am okay with it...but many times I am not. Headaches, eyes burn...nausea. Liken to a good whiff of chemicals...egads.

And how are you and life across our northern border?

Hugs,
Oluwa
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Jennyfoo · Posted: Wed Jun 25, 2008 10:35 pm Post subject:

EEK! I MADE hubby come on in the kitchen and take a look at what those dang lights do to me tonight! I was cleaning in there for about 1/2 hour after the kids went to bed and I'm beet red and splotchy all over my arms, shoulders(tank top)- look like I have a sunburn. The malar rash is beet red on my face and now I've got a whopper of a headache. What will it take to convince him it's worth the $100 or so and few hours of labor to replace those lights? I swear if he doesn't do it in the next week or two, I'm calling an electrician.

KathyW1958 · Grizzly Bear Joined: 12 Jun 2008 Posts: 702

Hi Jenny
I am wondering if you have tried opaque shades over your lights. I have a flourescant light in my kitchen and boy oh boy that thing about drove me nuts. My mother-in-law owned the house before she passed away and we bought the house. I made my husband put an opaque shade over it. The shade seems to help a lot. Before I would get a really bad headache from only being in the kitchen for 10 minutes or so. I am just wondering is all.

Kathy
_________________
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

Jennyfoo · Posted: Thu Jun 26, 2008 8:51 pm Post subject:

they're can lights- pot lights. There are no covers available that we can find for them- we even asekd the builder when we moved in. IT looks like Hubby will have to pull down the lights and install new ones that take Incandescent bulbs.

I went to Wal-Mart today to get new glasses- YAY for my new transitions lenses that my insurance covers. WOOT! We did a little shopping too and after sitting and walking under flourescents for 2 hours I have scalp sores that feel like blisters in the back where my hear is thinning. They HURT- probably because I didn't know what the heck was up and scratched them. The malar rash is nice and bright- shining through my makeup and my arms look horrible. I really need to get Hubby to get up in the closet on the shelves and get down the winter clothes bin so I can get my long sleeved shirts out. Fun idea. Long sleeve shirts and long pants in 100+ degree Sacramento area summer. GAH!

Saysusie · Posted: Fri Jun 27, 2008 8:31 am Post subject:

And don't forget, you should wear a hat when you are in department stores, to protect your head. Laughing

Peace and Blessings
Saysusie
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Look For The Good and Praise It!

Jennyfoo · Posted: Fri Jun 27, 2008 11:11 pm Post subject:

ya, I know- I was an idiot and forgot my hat. I think I need to just put one in the car and keep it there. It's bad enough tying to get out of the house with 4 kids, remembering the baby stuff, my cell phone(forgot that when we went out today), etc. It's not uncommon for us to have to go back home because something was forgotten. gah!

mnjodette · Posted: Sat Jun 28, 2008 3:49 am Post subject:

My brother is a retired captain on the fire department. He still runs the FD credit union, and his assistant has lupus. He had ALL the fluorescent lights covered which these sleeves to shield her from the UV rays. And this was in the entire FD headquarters (except the engine bays, I expect.) He said it was an ADA thing, and he felt that it was the least they could do to accommodate her. I thought that was pretty forward-thinking. Wish all employers were so sensitive.

Jody
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"Always laugh when you can. It is cheap medicine." Lord Byron

KathyW1958 · Grizzly Bear Joined: 12 Jun 2008 Posts: 702

Hi Jody
I think that it is great of your brother to be thoughtful of the lady that has Lupus and cover the flourescent lighting for her. I had my husband put an opague shade on my kitchen light as it is a flourescant bulb and that has helped tremendously. I wish that the department and grocery stores would do the same, but I doubt that they ever will. I hate shopping, because of the lights. I dislike getting horrendous headaches. I am glad that your brother is that thoughtful and realizes that it is an ADA issue.

Hugs,
Kathy
_________________
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

hatlady · Tiger Joined: 16 Oct 2004 Posts: 811 Location: Illinois

Oluwa · Posted: Sun Jul 06, 2008 8:52 pm Post subject:

Faith....

This was the last place you posted..wondering how you are, how was your 4th.

Thinking of you....

Love..hugs,
Oluwa
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Faith · Cobra Joined: 25 Sep 2007 Posts: 461 Location: California

Hi Oluwa,

I have been mia for a while. I have a lot of catching up to do in the next few days. My 4th of July was good; how about yours? My hubby set off fireworks for the kids and we ate watermelon. Yummy!! I am stocking up on lights as much as possible.

How are you doing? You always think of everyone . . . what would we do without you? I don't want to even think about that; too scarry.

I have an appt Tuesday for an MRI of the brain, and next week an appt with a neurologist to review MRI reports. I have had a couple moments where I was light headed and felt as if I was going to pass out. I was there; but not there just hanging on by a thread. I have been diagnosed with Anti-phospholipid Antibody Syndrome or APLS.

Joint aches are worse than normal and muscles and back are hurting more. I think it's due to the hot weather???? I am not complaining by any means as it could be a lot worse. On a good note, I found a new med used to treat Fibromyalgia for break away pain. It's called Soma 375 (generic). It works without making you sleepy; Yippeeeeeee! Wow, what a difference.

How are you doing? I hope you are well and not in a flare. How was your 4th of July? I could picture you like a little kid eating watermellon. How did you celebrate?

Take care,

Faith Cool

Oluwa · Posted: Mon Jul 07, 2008 4:16 am Post subject:

Hi Faith...Morning...

Boy it is coming at you from all directions...head hugs.

I hope the MRI doesn't reveal anything at all...that is is just the medication, combination....

I was having bouts of light headiness where I felt very faint. I would lose my balance and go whoa like I was in an earthquake. You know like aftershocks.. I thought it was my pills or hormones. Happened for months and it went away. Hoping yours is a result of something similar..or do you think it is the APLS? I know very little about APLS...

That is great...a new find, pill and with alertness too. I wish I could find one that doesn't produce muddle thinking. My brain, my thinking feels like I am trying to swim through pea soup in the dark to find my words, thoughts...

4th...domestic. Baby Back's on the grill, velvety Yukon mashed potatoes from the stove. Cruised about the area, getting lost. Had an abundance of leftover fireworks from last year...I sat on the porch while my husband snapped them off. No watermelon...though I do enough those. Fresh whole pineapple, was my fresh juicy fruit that day.

I've been swimming about the pool....no woes about IT really. My spin is in spine pain. I took 4 - 500mg Tylenol yesterday, nothing...Popped 3 Darvocet, gone. They say it is inflammation...my previous surgery had cause a straight cervical spine, a bit of instability from the fusion, transferring pain to my middle spine...now I notice the pressure on my lumbar. I had two surgeries prior there.

I feel like my spine is going to collapse and my head's weigh is too much...so I've only posted snippets of me these past few days. Too much pain with head hanging down while arms up typing..wow who knew that bit of movement requires alot of muscles...an orchestrated movement to type....

It's Monday...new week to unfold. I hope it is filled with good things.

Be well...hugs.
Love,
Oluwa
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Saysusie · Posted: Tue Jul 08, 2008 10:18 am Post subject:

Hatlady;
I think that you and I have been cojoined for years about our hats!! Laughing

All shapes, sizes, colors, materials, etc.
How did you do shopping for UV screens for your lights?
I hope all is going well with you. I'm always happy to see your posts when you are able to drop by!

Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It!

Saysusie · Posted: Fri Jul 11, 2008 8:25 am Post subject:

Hi Everyone;
I'm posting the following just FYI

Peace and Blessings
Saysusie

LFA's July 2008 Webchat

Join us for the "UV Light & Lupus" chat with guest expert Dr. Victoria Werth on Thursday, July 17, at 3 p.m. Eastern, and get your questions answered.

Dr. Werth is chief of the Division of Dermatology, at the Philadelphia Veterans Administration Hospital. She is also a Professor of Dermatology and Medicine at the University of Pennsylvania School of Medicine.
_________________
Look For The Good and Praise It!

Oluwa · Posted: Sun Jul 13, 2008 3:11 pm Post subject:

Hey Saysusie...

Is there a site, a link to the webchat?

L.,
O.
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