how many men are out there

Rahbuh · Posted: Sun Feb 17, 2008 9:50 pm Post subject:

We can be Rob West and Rob East! Cool

It is interesting when I tell people that I have Lupus because half of the time their response is, "Isn't that a woman's disease?" So, I can understand why a lot of guys don't want to talk about it.

So I'm curious with you being in Maine. Does the winter cold aggravate your symptoms? Being in California, the winter temps only get in the mid-30s but I feel more sluggish and get cold real easy. I feel a lot better during the summer with the hot weather. I know that someone posted at one time that it was the opposite for them. I am going to Cancun in August, so we'll see how the temps affect me there.

I had a check up with my rheumy on Friday. She was talking to me about taking DHEA. She said that a lot of Lupus patients who take it say that it helps to reduce their symptoms. She said that it helps with the fatigue. I want to start working out again to get back into shape (especially for cardio). I was thinking of trying it to see if it helps any. Ever heard anything about it?

By the way, the same goes on PM for me.

JohnnyBGood · Posted: Wed Jul 02, 2008 4:42 am Post subject:

I am 39 and live in Mississauga, Ontario, Canada and I have SLE.

I don't know any other people that have or have admitted to having Lupus.

Saysusie · Posted: Wed Jul 02, 2008 8:08 am Post subject:

Hi JohnyBGood Laughing

Welcome to our family and to the Men's Forum. I'm sure one of the guys will be in to chat with you here. Just wanted to let you know that you are welcomed to this family where everyone admits to having this disease Laughing

Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It!

JohnnyBGood · Posted: Wed Jul 02, 2008 9:19 am Post subject:

Thank you Saysusie. It's good to know that I am not alone and that I have friends out there that I can ask random questions too and who understand.

I am sure you've seen me around asking questions in other forums on this site.

StuwiW · Posted: Tue Oct 21, 2008 1:12 am Post subject:

Im 23, had lupus since I was 17, Im from South Africa

Saysusie · Posted: Tue Oct 21, 2008 9:56 pm Post subject:

Hello and Welcome StuWiw;
I see that you've already participated in some of the other forums here and that you've met Rob, our moderator. He is a wealth of information from a man's perspective and he is a cherished member of this family. I'm sure that you can call upon him and find that he is always ready and willing to help. Otherwise, every single member of this family is here to help you in any way that we can. I hope that we can help you whenever you need it!!

Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It!

StuwiW · Posted: Tue Oct 21, 2008 10:31 pm Post subject:

Hi Saysusie

Thank you soo much, I can see that you guys are wonderful. I will surely make more posts here as i have lots of questions.