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WeHaveLupus.com Lupus Erythematosus Support Forum |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 3924 Location: Victorville, California
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Posted: Mon Jan 19, 2004 6:58 pm Post subject: Answers provided on this forum |
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Dear Members;
The research and/or answers provided on this forum are not meant to be used as a substitute for medical advice. The information provided and presented is for your education and your support. This can be a lonely and misunderstood disease and we want to help you to lessen those feelings.
We are here to help you in any way that we can and to offer each of you as much support as we can for as long as you need it.
But, please see your personal physician for professional evaluation of your individual cases!
Peace and Blessings To You All
Saysusie |
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mamaj Newbie Alert

Joined: 01 Jun 2008 Posts: 4 Location: mississippi
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Posted: Sun Jun 01, 2008 9:03 am Post subject: I am sorry, I am not sure how this really works. |
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I have been sent from doctor to doctor for aray of systoms and illnesses. I finally started doing some of my own research. I was not raised by my bio-mom, so I found her and to found out the medical history. The usual stuff, except for Lupus. I never heard of it. I have been reading about it. So many things seem to make sense. I have yet another doctor's appointment tomorrow ( a new doctor I have not seen). I have been at the same library in Pearl, MS for 4years. Sick off and on, but, since last year about Nov. I have been real bad, even worse since Feb. 08 I am now down to the last 40 hrs of the family medical leave to secure my job. I told my boss' my theory of Lupus. You know that roll of the eyes look and she just doesn't want to work look. I'm sick of; it is all in your head, being a hydrocondric(spelling), lazy, over reacting, just go to the ER and get a shot, (but when you go, they think all you are is a drug seeking adict)
My husband is a really good guy, married 30 years, but even he has limits, drs, er rooms, hospitals, no money for bills, drugs for breakfast, lunch, dinner and bedtime. He says, "no wonder I'm sick!"
So, how does this work? You just get on and go where to actually post to talk to everyone and how? I have never done this before.
Thanks,
mamaj |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 3924 Location: Victorville, California
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Posted: Mon Jun 02, 2008 7:47 pm Post subject: |
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Mamaj;
I am sorry to hear that you are having so many difficulties. This is a place filled with caring, understanding, informative and supportive people. We are here to help you in any way that we can and as much as we can. Welcome to our family
With reference to posting; You can browse through all of the forums here and post in whichever forum you feel fits your subject. If your subject is general, then you can post in "Lauri's Lounge". That is usually the first place that most people go to until they get the hang of things.
Regardless of where you post your questions, comments, concerns, etc., someone will respond because there is always someone here! You are never alone when you are here with us!
Peace and Blessings
Saysusie _________________ Look For The Good and Praise It! |
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mamaj Newbie Alert

Joined: 01 Jun 2008 Posts: 4 Location: mississippi
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Posted: Tue Jun 03, 2008 3:56 am Post subject: thanks for the reply |
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Thanks for the reply.
I went to yet another doctor yesterday. My husband was not going to go with me at first, but I really did not feel up to driving. So he came along, and instead of staying in the waiting room came back with me. While I made the list of medicines and sugeries and doctors seen , etc; the doctors cuts me off mid-sentence and says,"So Danny, when she gets this way, what happen next?" I wanted to scream "HELLO!!
But, in the end he said I needed a Neurologist. I said I had been trying to get in to see one and would he help. NO. Get your records and hand deliver them. I asked him if he had heard of Lupus and he said he did not think that was my problem.
My husband went back to work, I came home took 2 lorocet which barely makes a dent and laid down.
I am going to lose my job which I love. I was told they will make the decesion for me if I don't make the decesion for myself. I don't know if it is better to let them fire me or just resign; either way I lose my medical insurance; no insurance, no medicine.
I need to get ready for work.
mamaj |
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Oluwa King of the Jungle


Joined: 23 May 2007 Posts: 1673 Location: SC
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mamaj Newbie Alert

Joined: 01 Jun 2008 Posts: 4 Location: mississippi
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Posted: Wed Jun 04, 2008 3:17 am Post subject: links |
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Thanks for the links.
My husband is convinced I have Multiple Chemical Sensitivity (MCS).
I saw my GP yesterday and told him we need to do something before I lose my insurance and ask for a pain shot. He had blood and urine labs done; and wrote me an excuse for work that I may not be able to handle an 8 hour day. My boss is still a "B----". I called her and told her I would be at work this morning. Which I better go start getting ready; it takes longer these days.
mamaj |
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