Just Diagnosed with CLE/Discoid Lupus

joakris · Posted: Fri Mar 28, 2008 12:44 pm Post subject:

Thanks sits!
I have a derm appt next week so im gonna go over all my otptions with her and get her opinion... I will admit i am scared as to how the summer will be!

sits_inthe_corner · Posted: Fri Mar 28, 2008 12:52 pm Post subject:

Hi joakris

#monalisa

I used make up and ALOT of it hahahahaha we finally found a cream medication that has cleared me up...but I have to use it all the time to keep it under control. The worste part for me was the pain...my face had never hurt so much...and I've had the face full of sunblisters lol.

I used to work as a life guard as a teenager! Duh! not a good job for me. I was soooooo sick all the time....now I can take a wild guess why?

Lupus + direct sunlight = TROUBLE
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joakris · Posted: Fri Mar 28, 2008 1:02 pm Post subject:

you know i never thought it might be sun blisters! hmmmmm.... and my face hurts as well.... its really dry but yet i have acne looking bumps >? that makes no sense? people get acne from oily skin and clogged pores i have no oil and noramaly clear skin!
I only breakout, maybe once a month! and i think any woman knows what i mean! =)

sits_inthe_corner · Posted: Fri Mar 28, 2008 1:11 pm Post subject:

It could be anything joakris

Rosacea is another possibility...I have it and let me tell you it hurts like the *Meat Flute*...but the cream keeps it under control.

I hope you get answers quickly cause it's very painful Sad

edited to say...ummm how can I phrase this...that statement up there was supposed to read differently...as in hurts like the D _ ckens.

It would seem I triggered a word filter Very Happy

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joakris · Posted: Sun Apr 06, 2008 3:09 pm Post subject:

Okay so I went to the derm! she thinks it looks like acne! so she gave me some cream and so far its working! hopefully this will help.
Also I went to the alergist and foun out that I am alergic to eggs! and penuts, and he thinks Im lactose intolerent! so all week end I have been tryin to figure out what the hell im gonna eat! =) meat and potatoes! =) lol

sits_inthe_corner · Posted: Sun Apr 06, 2008 3:22 pm Post subject:

wow joakris

I guess it's good that you got some answers...

It's difficult juggling around with what you can eat and what you cant.

I'm quite worn out with it, so I'm looking for ward to speaking with a nutricianist. I need help preparing a menu that makes me happy and is healthy. I'm quite willing to pay someone else to figure out my needs and try to fit it to my life style.

I get so frustrated when I'm in the grocery store.

I'm glad the cream seems to be working for you. If it fails to continue working for you, head back to the doctor's and let them try to figure it out.

There was a cream that I used called spector. It was actually quite good. But terns out it wasn't what I needed.
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