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WeHaveLupus.com Lupus Erythematosus Support Forum |
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livingINmyDayDreams Tadpole

Joined: 25 Jan 2008 Posts: 24
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Posted: Fri Jan 25, 2008 3:41 am Post subject: |
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-=-=-=- YOU-=-=-=-
1. Name: Julie
2. Age/D.O.B: 15/ August 11, 1992
3. Boyfriend/Girlfriend's Name: none, sadly
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Light purple, like lilac
5.Your favorite meal to cook: pasta
6.Your favorite meal to eat out: not sure
7.Your Favorite drink: Grape soda
8.Your favourite movie: too many
9.Your favorite song: ha ha ha what ever I seem to like in the week, I love music, so too many songs.
10.Your favorite Actor/Actress: none
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 13
12. What are you taking now? Cellcept and Hydroxychloroquine otherwise known as Plaquenil
13. Does it help? Yes
14. What have you taken? Cytoxon, Pregnizone (not sure how to spell it)
15. Do you want kids? Yes, I love kids
16. Does anyone else in your family have LUPUS? I think some cusion. Like a third cusion, if there is such a thing. I've never met them so it doesn't matter.
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 of each
18. Neices or nephews? Nope
19. What state do you live in? Pennsyvania
20. Where would you live if you had the chance? Anywhere in the country
21. What is your lucky number? 4
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) High School, sophmore (Still can't spell)
24. Anything else that you want to tell us!! If you haven't noticed, I can't spell. I really want to talk to teens around my own age with lupus, I think it would be cool. So yeah...if you want to talk go ahead, I'd be pleased to talk to you. |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 4184 Location: Victorville, California
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Posted: Fri Jan 25, 2008 10:21 am Post subject: |
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Welcome to this forum and to our family. Hopefully, some of our teens will pop in and chat with you. In the meantime, please feel free to join us in the other forums here.
Peace and Blessings
Saysusie _________________ Look For The Good and Praise It! |
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ayshi123 Not So Newbie


Joined: 17 Feb 2008 Posts: 6 Location: Michigan
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Posted: Mon Feb 18, 2008 10:13 am Post subject: |
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1. Name: Ayasha
2. Age/D.O.B: 19 yrs old- 1/11/90
3. Boyfriend/Girlfriend's Name: lol
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue
5.Your favorite meal to cook: pasta with chicken and spaghetti sauce
6.Your favorite meal to eat out: taco bell
7.Your Favorite drink: coke
8.Your favourite movie: titanic
9.Your favorite song: too many
10.Your favorite Actor/Actress: jessica alba
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 8th grade
12. What are you taking now? plaquenil/aspirin/vicadin/lortab
13. Does it help? the vicadin and lortab helps
14. What have you taken? prednisone pills/dexamethasone shots/plaquenil/aspirin/vasotec/prilosec nd more but i forgot
15. Do you want kids? omg yes ...luv kids.. but i hear with lupus theres some doubt :""(
16. Does anyone else in your family have LUPUS? nope jus me
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 brother 3 sisters (2 are married)
18. Neices or nephews? yes 2 nephews and a niece on the way
19. What state do you live in? Michigan
20. Where would you live if you had the chance? New York
21. What is your lucky number? "3"
22. Are you in school? yes
23. What kind? High school (12th grade)( High School, college, etc.)
24. Anything else that you want to tell us!!
Im so happy that i joined this forum. its good to know that im not the only one....  _________________ -Ayasha- |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 4184 Location: Victorville, California
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Posted: Mon Feb 18, 2008 12:36 pm Post subject: |
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Hi Ayasha
Welcome to our family. I've read your posts in other forums and I am so happy that you've joined us.
Hopefully, some of our teen members will be here soon to chat with you! Until then, continue to join us in the other forums here, someone will always be available to respond to you!
Peace and Blessings
Saysusie _________________ Look For The Good and Praise It! |
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seekthejoy Not So Newbie

Joined: 15 Feb 2008 Posts: 6 Location: North Carolina
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Posted: Wed Feb 20, 2008 3:39 pm Post subject: |
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=-=-=- YOU-=-=-=-
1. Name: Lizzie
2. Age/D.O.B: Oct. 1989
3. Boyfriend/Girlfriend's Name: none. i'm single and happy
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: blue
5.Your favorite meal to cook: pasta or pizza
6.Your favorite meal to eat out: thai food
7.Your Favorite drink: diet coke
8.Your favourite movie: a love song for bobby long or juno
9.Your favorite song: anything my friend emily sings
10.Your favorite Actor/Actress: scarlett johanson (sp?)
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 18
12. What are you taking now? prednisone
13. Does it help? hard to tell. its my first day on it
14. What have you taken? so far just things for pain (ie hydrocodone)
15. Do you want kids? definitely
16. Does anyone else in your family have LUPUS? no, i'm the first
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 1 little sister and 1 brother
18. Neices or nephews? no. i'm the oldest
19. What state do you live in? NC
20. Where would you live if you had the chance? where i am. i love the mountains but i want to go to new zealand
21. What is your lucky number? i don't have one
22. Are you in school? yes
23. What kind? ( High School, college, etc.) high school, but college in the fall
24. Anything else that you want to tell us!!
have any of you other teenagers heard of minocyclin induced lupus??? supposedly its the most common form of drug-induced lupus in teenage girls and in the UK they won't prescribe it to people without running multiple tests first. we're trying to figure out if i have drug-induced lupus that will go away in around 2 years or the real deal. let me know if you have any information on this! |
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Gisèle Ferret


Joined: 05 Oct 2007 Posts: 103
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Posted: Sun Mar 23, 2008 6:39 pm Post subject: |
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-=-=-=- YOU-=-=-=-
1. Name: Gisèle
2. Age/D.O.B: 17
3. Boyfriend/Girlfriend's Name: none
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Lilac
5.Your favorite meal to cook: hmm..probably pasta with salad
6.Your favorite meal to eat out: pasta and salad
7.Your Favorite drink: water
8.Your favourite movie: too many to mention
9.Your favorite song: it changes so much!
10.Your favorite Actor/Actress: Katherine Heigl
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? became suspected 16
12. What are you taking now? prednisone, plaquenil, vit D
13. Does it help? yes
14. What have you taken? prednisone, plaquenil, vit D
15. Do you want kids? I don't really see kids in my future, just not a kid person
16. Does anyone else in your family have LUPUS? Not that we know of
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? twin brother
18. Neices or nephews? no, it would be fun to be an aunt, though!
19. What state do you live in? --
20. Where would you live if you had the chance? Washington, DC
21. What is your lucky number? 22
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) High School, Junior
24. Anything else that you want to tell us!! My dream and ultimate ambition is to become a medical doctor, and actually, this past year, I have become quite interested in rheumatology, I am thinking about interning next summer with my rheumy! |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 4184 Location: Victorville, California
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Posted: Mon Mar 24, 2008 8:47 am Post subject: |
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Welcome Back Gisele  _________________ Look For The Good and Praise It! |
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Darkhime Not So Newbie

Joined: 05 Apr 2008 Posts: 9
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Posted: Sun Apr 06, 2008 7:56 am Post subject: Re: Hey Teens tell us about you |
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-=-=-=- YOU-=-=-=-
1. Raine
2. 15, May 8th
3. Boyfriend: Jake
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: Blue
5.Your favorite meal to cook: Rice
6.Your favorite meal to eat out: BBQ chicken
7.Your Favorite drink: Yogurt shake
8.Your favourite movie: 1408
9.Your favorite song: Die Die My Darling
10.Your favorite Actor/Actress: Jackie Chan
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 12
12. What are you taking now? Plaquenill
13. Does it help? Yes
14. What have you taken? Plaquenill, steroids, and i forgot the rest
15. Do you want kids? Yes
16. Does anyone else in your family have LUPUS? No
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? Yes, younger sister
18. Neices or nephews? No
19. What state do you live in? NJ
20. Where would you live if you had the chance? Turkey
21. What is your lucky number? 8
22. Are you in school? Yes
23. What kind? ( High School, college, etc.) High School
24. Anything else that you want to tell us!! I am a writer, I love to draw anime, I want to become a computer engineer. |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 4184 Location: Victorville, California
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Posted: Sun Apr 06, 2008 11:14 am Post subject: |
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Welcome Raine; I hope that you find support and understanding here.!
Peace and Blessings
Saysusie _________________ Look For The Good and Praise It! |
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crushingpretty Not So Newbie


Joined: 07 Apr 2008 Posts: 8 Location: Indianapolis, Indiana
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Posted: Tue Apr 08, 2008 11:01 am Post subject: |
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I'm no longer a teen, technically. But it has been a recent change and I'd like to offer any support to the teens in this forum, especially since I am so close in age. :)
-=-=-=- YOU-=-=-=-
1. Name: kate
2. Age/D.O.B: 02.08.1988
3. Boyfriend/Girlfriend's Name: James
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: poppy red and sunflower yellow
5.Your favorite meal to cook: variations of chicken. <3
6.Your favorite meal to eat out: Mexican food!
7.Your Favorite drink: I like water and pomegranate juices.
8.Your favourite movie: So many.
9.Your favorite song: lupus/disease related; Awesome by Darling Violetta
10.Your favorite Actor/Actress: I really like Zooey Deschanel.
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 16
12. What are you taking now? prednisone-lupus, cozaar-kidneys
13. Does it help? I'm pretty healthy these days.
14. What have you taken? too many to count, honestly.
15. Do you want kids?
I was devastated when I learned that I might not be able to have children. But I keep breaking through barriers. So I think I have a good chance at having them. :) If not though, my boy (who has been with me through everything) is more than fine with adoption.
16. Does anyone else in your family have LUPUS?
Multiple girls in my family were checked out when I was hospitalized; a cousin came back positive for it. My mom was recently diagnosed. (And doesn't seem to want to take care of herself. -_-)
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? sister; Sarah
18. Nieces or nephews? No.
19. What state do you live in? Indiana
20. Where would you live if you had the chance?
I love Indy, but I want to travel a lot. I've been to Korea, Quebec, Ireland and this summer I'm going to England and back to Ireland! :)
21. What is your lucky number? I don't have one.
22. Are you in school? Mhhm.
23. What kind? English major? 2nd year college.
24. Anything else that you want to tell us!!
I have dealt with many many many things because of lupus; losing fellow lupus friends, kidney failure, dialysis, HIGH SCHOOL with lupus, parents who get overprotective and overbearing, friends that have no idea what's going on, teachers that don't understand, self-esteem issues, hairloss, weight loss (extreme), and plenty of other things.
And what I mean to say is that I would love to try and help any of you feeling like you'd want an open ear, advice or anything like that. :) |
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butterfly7 Newbie Alert


Joined: 12 May 2008 Posts: 3 Location: small town New york
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Posted: Mon May 12, 2008 11:07 am Post subject: Re: Hey Teens tell us about you |
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| icegurl121691 wrote: | -=-=-=- YOU-=-=-=-
1. Name:Amanda
2. Age/11-20-88:
3. Boyfriend/Girlfriend's Name:single
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour:blue & purple
5.Your favorite meal to cook:steak w/ rice & beans
6.Your favorite meal to eat out:idepends on wat im in the mood for
7.Your Favorite drink:ice cold water
8.Your favourite movie:bronx tail
9.Your favorite song:right now its bleeding love
10.Your favorite Actor/Actress: can't say i got one
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed?13
12. What are you taking now?prednisone & plaquenil
13. Does it help?for the most part
14. What have you taken? wat?
15. Do you want kids? yea but i don't know if its possible
16. Does anyone else in your family have LUPUS? my father
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters?yea
18. Neices or nephews?yea
19. What state do you live in?new york
20. Where would you live if you had the chance?florida
21. What is your lucky number?5
22. Are you in school?yea
23. What kind? ( High School, college, etc.) high school
24. Anything else that you want to tell us!! |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 4184 Location: Victorville, California
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Posted: Mon May 12, 2008 11:49 am Post subject: |
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Welcome Butterfly7 and I'm sorry I missed you Seekthejoy, you are welcomed here also!
Peace and Blessings
Saysusie _________________ Look For The Good and Praise It! |
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racinie Tadpole

Joined: 10 Apr 2007 Posts: 28 Location: West Lafayette, IN
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Posted: Mon May 12, 2008 5:35 pm Post subject: |
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=-=-=- YOU-=-=-=-
1. Name: Jessica
2. Age/D.O.B: 10/21/1988
3. Boyfriend/Girlfriend's Name: Ben
-=-=-=- Favorites! -=-=-=-=-
4.Your favorite colour: green
5.Your favorite meal to cook: ramen if I'm cooking...
6.Your favorite meal to eat out: Sushi or breakfast
7.Your Favorite drink: diet coke
8.Your favourite movie: Amelie (everyone should see it.)
9.Your favorite song: Letter form an Occupant by the New Pornographers
10.Your favorite Actor/Actress: julie andrews maybe?
-=-=-=- lupus Related -=--=-=-
11. How old were you when you were diagnosed? 7 (first time), 18 (second time)
12. What are you taking now? Cellcept (THANK GOD FOR CELLCEPT), prednisone, lisinopril, plaquinil
13. Does it help? yes!!!! them doctors know what they're talking about!
14. What have you taken? everything i'm on, plus some NSAIDs that didn't work.
I was on heavier chemo drugs as a kid.
15. Do you want kids? I'm not sure. I like the idea of having kids, but I'm not sure that I as a person (not becuase of lupus) could handle it. We'll see!
16. Does anyone else in your family have LUPUS?
My grandmother, she died as an old lady of cancer. My mom had scleroderma, but lost that fight too.
-=-=-=- Random! -=-=-=-
17. Any brothers or sisters? 2 sisters and a brother, all older
18. Nieces or nephews? a bunch... 6, one on the way.
19. What state do you live in? Indiana
20. Where would you live if you had the chance? AMSTERDAM!
21. What is your lucky number? 57
22. Are you in school? yes, Purdue University, West Lafayette,IN
23. What kind? junior, premed/nursing
24. Anything else that you want to tell us!! lupus sucks. I want to go to school to help beat the s*** out of rheumatic disease so no one else needs to put up with it anymore. |
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Saysusie Moderator


Joined: 11 Nov 2001 Posts: 4184 Location: Victorville, California
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Posted: Tue May 13, 2008 9:06 am Post subject: |
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Hi Tadpole;
I fell like you are an "Oldie" member since you've already shared so much with our members. But, let me give you a big WELCOME also!
Peace and Blessings
Saysusie _________________ Look For The Good and Praise It! |
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racinie Tadpole

Joined: 10 Apr 2007 Posts: 28 Location: West Lafayette, IN
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Posted: Tue May 13, 2008 10:00 pm Post subject: |
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| crushingpretty, if you ever make the trip an hour north to Purdue, give me a shout. jracine@purdue.edu |
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