Imuran - help. questions. problems. what 2 do.

payitforward · Tadpole Joined: 21 Apr 2007 Posts: 28

hi mary...wow. great information. we are a motly mix here that is for sure. my kidneys aren't as bad as yours at the moment..which i'm thankful for..I would have to check with medicare about the IVIG = under my old Blue Cross Plan it was covered, but i got shoved onto medicare once the 2 years were up for being disabled. I'll check on it..

I'm still undecided what to do with treatment. I'm so frustrated with the doc at the moment - which is unlike me as I love this doctor - but I am not loving how i am feeling or what is going on...I've been off imuran for a week and again today having problems -- didn't throw up at all except for last monday -- doc today said its still in my system and to accept that. so fine...we'll be talking about stuff on friday...so i need to be ready for then....i like the once a month thing alot! lol. i'd even go for 4 days mega doses -- for days of h e double hockey sticks would be better than every day....

i'm so happy for you that things have worked out and that you must be a very strong person to be working and taking care of kids AND being sick...that is alot...i know my kids take alot of energy and i think everyone knows how things are going with the teen - but my little guy -- he's a busy boy and has tons of friends and he's a sports nut so he's busy...i like him to spend time with friends..except now tonight its 10pm and he's doing homework which i don't like at all...thank the Lord this doesn't happen often..summer fever is starting to hit....

anyway, i'll look forward to hearing more about ivig....i'm on the fence about the medicine part....cytoxin is much stronger...that worries me a bit...but you said you didn't have a ton of side effects as i remember it...what effects did you have....good and bad and how long did the good take to kick in.....

at this point i originally joined the group with a question about loving prednisone....well not so loving it now...think i'd rather just suffer in pain...i can't do pain med's because they make me so nauseated...not sure however my heart is still a problem...and i don't know for sure if its prednisone or imuran....one of them is still causing me problems....doc was not happy and wants me into cardio -- but had that in the hospital and they are of the opinion that something else is causing it -- lupus and that needs to be under control....SIGH....i want to get on lower dose of prednisone and see what happens....

ok...gotta run....take care....t

mnjodette · Posted: Tue May 22, 2007 7:50 pm Post subject:

Hey, Todd. Just checking in. Hope you had a good day - or at least some good hours! School is winding down for your boys, and I bet they're driving you nuts - my sons always drove me nuts towards the end of the school year. But summer's with them were fun. Your little guy is at a good age - the teenager?...not so much! Laughing

We had this conversation, I think....my oldest was (still is) a challenge. Gotta' love 'em, but you don't always have to like 'em.

Glad to hear you like your doc. But, even good docs sometimes don't have good answers. I hate being in pain; getting tired; feeling weak - but I still do a lot. I know the meds are working (it was soooooo much worse before) but there doesn't seem to be a magic bullet. Maybe it's all a matter of degrees.

Getting late for me - I'm fading. Hoping tomorrow's a good day for you.

Jody
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"Always laugh when you can. It is cheap medicine." Lord Byron