Lupus Nephritis

terrilynn49 · Posted: Thu Mar 15, 2007 6:54 am Post subject: Lupus Nephritis

Hello, I have had SLE since 1992, this week I was also diagnosed with Lupus Nephritis and have been put on the medicine CellCept 1000MG. Is anyone familar with this drug? what should i expect to experience on this medication. Thank you.

the wingless one · Posted: Fri Mar 16, 2007 7:31 pm Post subject:

Hello I recently stopped taking 1000 mg of CellCept twice a day. Before a month ago I took it for just about two years and I really never experienced any noticeable side effects. I was told it could affect the digestive system and that I might notice diarrhea, stomach aches, nausea, etc...ironically enough about two weeks AFTER I stopped I started having a lot of these symptoms although I'm pretty sure it's not related to stopping the medicine.

Anyway, good luck with it, it seems to be the best you can get in terms of a medicine to treat lupus nephritis. According to my nephrologist it's much better than cytoxan which can be very toxic and damage your reproductive organs as well as make you much more susceptible to certain cancers.

Oh another thing you will have to be careful about on CellCept is making sure to get your blood tested regularly because it can affect your white blood cell count. Hope that was somewhat helpful...I'm not an expert by any means, just someone who's been on CellCept for way too long =P =)

ganesha · Goldfish Joined: 28 Mar 2006 Posts: 56

Here are a couple threads that talk about Cellcept and peoples experience with it.

http://www.wehavelupus.com/message-board-forum/viewtopic.php?t=2513&highlight=cellcept

http://www.wehavelupus.com/message-board-forum/viewtopic.php?t=2356

http://www.wehavelupus.com/message-board-forum/viewtopic.php?t=604

I would suggest reading through those threads and come back hereto this thread to ask questions if you still have some lingering. Of course this will not give you the whole picture but should be a good start. I have had good luck with the Cellcept myself. I notice a bit of muscle cramping now and then and not sure if it is the Cellcept or not. I was put on Prednisone and a couple others at the same time with muscle cramping being the only real side effect I have had, so who know where to attribute that. But they have done their job and my numbers are getting better, so I am pleased with the Cellcept overall for sure.
Good luck
Brent
_________________
Ganesha is:
*A T11/12 paraplegic since 2000.
*A colorado medical marijuana patient.
*As active as possible with handcycling being my primary passion, but Lupus has thrown a wrench in that pursuit for too long.
*A Certified Therapeutic Recreation Specialist currently working with an adult with a TBI.
*And much much more:)