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WeHaveLupus.com Lupus Erythematosus Support Forum |
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angela Alley Cat


Joined: 17 Nov 2004 Posts: 178 Location: n. california
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Posted: Mon Mar 12, 2007 7:44 pm Post subject: Hyperbaric Chamber/Pure Oxygen |
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Hi there everyone!! i hope that all is well w/ u and yours? the weather here has been just glorious here in Hercules!!!! ahhh i just luv spring! not summer, spring!! (fall too!).
anyway, dear hubby, whose always prowling the internet for new info/treatments, cam accross hyperbaric oxygen chamber being used for treatment of lupus, as well as for other ailments (we also have a newphew with severe cerebal palsey due to a botched delivery-yep, the hospital settled).
has anyone heard of this?
be well  |
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MARYCAIN King of the Jungle


Joined: 03 Aug 2006 Posts: 1576
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Posted: Tue Mar 13, 2007 6:35 am Post subject: |
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Well, I've heard of it for neuro problems in lupus, but I don't know anyone who has used it for lupus. And most insurers won't cover it for lupus because it's considered experimental. I had one treatment when I had osteomyelitis - it is covered by insurance for treatment of chronic osteomyelitis. I should say I was supposed to have a whole course of treatment, but I couldn't make it all the way through the first one, and the osteomyelitis specialist didn't recommend trying again. I am very claustrophobic, and that was like my worst nightmares. So I don't know if it might have helped the neuro lupus or not.
Last edited by MARYCAIN on Tue Mar 13, 2007 11:12 am; edited 1 time in total |
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angela Alley Cat


Joined: 17 Nov 2004 Posts: 178 Location: n. california
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Posted: Tue Mar 13, 2007 10:51 am Post subject: |
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ahh. thanks the condition u had it for, thats like severe animia, right? mine isnt that bad. my main problem is cns, heart, and lung involment, and the seizures. i just want to get it under control so i can have at least some of the life i had before oct 2006 sorry, just a little bummed today. however, i am trying out our local paratransit service for the first time today to see how it goes, and i'm pretty excited about it!!
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