Iloprost infusion

sprant · Tadpole Joined: 02 Oct 2007 Posts: 16

Hello all,

I was wondering if anyone has had an iloprost infusion before. My rhuemy suggested that I should consider having one to help with my circulation and raynauds symptoms. I got put off by him saying I will have to go to hospital for 5 days to get the infusion. I am on nifedipine at the moment but don't like the side effects, so maybe I should give it a go in order to stop the nifedipine.

Would love to know others experiences of having an iloprost infusion, and whether it was beneficial or not.

Thanks

KathyW1958 · Tiger Joined: 12 Jun 2008 Posts: 810

Hi Sprant,
Welcome to the site. I have no idea about this type of infusion. Saysusie or Oluwa may know about this and have some answers for you. I just want to welcome you and hope that you will keep posting.

Hugs,
Kathy
_________________
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

sprant · Tadpole Joined: 02 Oct 2007 Posts: 16

Hi Kathy,

Thanks for your lovely welcome and reply. It's always helpful finding out others experiences when trying to make choices etc and meeting lovely people. So I am sure I'll be hanging round.

Laughing

KathyW1958 · Tiger Joined: 12 Jun 2008 Posts: 810

Hi Sprant,
Good morning to you and I hope that you are doing ok today. I just got up a little bit ago and wantted to drop in and say hi.

Hugs,
Kathy
_________________
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

sprant · Tadpole Joined: 02 Oct 2007 Posts: 16

I am having a good day, because it is WARM. Yahoo I love days like these, makes everything so much easier.

How are you going today?