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girlsquirrel71
Tadpole
Joined: 02 Nov 2005
Posts: 19
Location: Pennsburg, Pa
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 Posted: Fri Nov 11, 2005 10:52 am Post subject: Miserable (day to whine) |
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I am absolutely miserable today.  The rash is now under my boobs and arm pits!!!  my fingers feel tight, the only new thing is the rash isn't raised any more, I am on alot of prednisone so my blood sugar is all bawled up as well. I am trying to stick it out but then the curse arrive this morning. Will it ever end??? sorry to be a stick in the mud, just frustrated. The rheumy said I dont have to return to work until my recheck on 11/21, god i hope I see improvement by then.  Thanks for listening. |
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Colleens
Tadpole
Joined: 29 Oct 2005
Posts: 21
Location: Virginia, USA
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| Posted: Mon Nov 14, 2005 7:00 pm Post subject: |
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Welcome! Sarna lotion works for me on the rash. Believe me it was so bad i couldnt sleep for days. tried all the creams and steroids, finally pred works and Sarna (available at CVS or most drug stores.)
_________________
Dx this year SLE but because of past symptoms and testing I think I've had it 15 years!Dx 1990 Fibromyalgia, depression, OA, migraines, plantar fasciitis, tarsal tunnel synd. both feet.Heart surg '97 for bicuspid aortic valve w/regurg. hi cholestrol. |
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girlsquirrel71
Tadpole
Joined: 02 Nov 2005
Posts: 19
Location: Pennsburg, Pa
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| Posted: Tue Nov 15, 2005 7:44 pm Post subject: Thanks for info |
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I just wanted to say thank you to all of you who have given me some recommendations to get through this "itchy" period. The Sarna is a god send!!! I also love the kiss my face products, when i go back to work next week, I may peel like a lizard, but its babies butt underneath!!!!!  |
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Jodi
Not So Newbie
Joined: 07 Nov 2005
Posts: 6
Location: NJ
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| Posted: Tue Nov 22, 2005 2:37 pm Post subject: is itchy normal? |
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Hi guys,
I noticed I'm not the only one who is itchy! I was only recently diagnosed with SLE (in August) and haven't experienced any itchiness or rashes (except when in the sun) until now. I woke up early this morning scratching my leg and couldn't stop. All day at work my neck has been itching like crazy, and on top of it all my nose and cheeks are bright red. My neck is red from scratching - I look like I have sunburn! I never had this symptom before, and I don't see my rheumatologist again until the end of December (I was just there 3 weeks ago). Is there anything I can do about this itching? It's almost Thanksgiving, and I look a mess. Should I call my doctor and try to get in sooner, or just deal with it until my next appointment?
Jodi |
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girlsquirrel71
Tadpole
Joined: 02 Nov 2005
Posts: 19
Location: Pennsburg, Pa
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| Posted: Wed Nov 23, 2005 3:19 pm Post subject: Call Now!! |
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| you should absolutely call your doctor. My rash started small and wound up encompassing my entire body (EVERYWHERE!!!) If it wasn't for the prednisone and antimalerial I would have gone crazy. I also got a recommendation for SARNA from CVA Pharmacy, it works and takes the itchiness out but I wouldn't put it on my face. Oatmeal baths but not too many when the redness goes away you will peel like crazy. Hope this helps. I was out of work from this rash because its was so debilatating and just finally went back today!!!! |
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