new to this site

sheemee · Posted: Tue Aug 05, 2008 6:17 am Post subject: new to this site

HI all,
I'm new to this site. I have had lupus for about 25 years, I have joint problems and have the butterfly rash am constantly lethargic every day. I have had numerous other lupus related problems since being diagnosed. I live in the U.K. it seems to me that people in the U.S. are more aware about lupus than they are over here, or am I mistaken?
I try to keep cheerful, I know that it is difficult sometimes but hey there's always someone worse off than you isn't there.
So hello evry1

KathyW1958 · Bear Joined: 12 Jun 2008 Posts: 692

Hi Sheemee,
Welcome to the forum. I am sorry that you are having problems. I have had lupus most of my life. I will be 50 in december. I am wondering what medications you are taking for your illness. I hope to hear more from you. This is a great site with a lot of wonderful people that are very knowledgeable that come in here.

Hugs,
Kathy
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Lupus for many years. Like most of my life. Sjogrens that started at 35 and Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

cheryl_v · Posted: Tue Aug 05, 2008 7:07 am Post subject:

Hi Sheemee, welcome. You are going to love this place. Everyone here is absolutely wonderful. Kind, caring, and many ears for listening. Sharp minds for advice and info. You couldn't have found a better place Very Happy

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Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

sheemee · Posted: Tue Aug 05, 2008 8:21 am Post subject: thanks

thanks kathy & cheryl for your kind responses.
I am on prednisolone(steriods) the usual pain killers and I take mepacrine, I used to be on azathioprine but they swapped that.I am trying to take as little medication as is possible. I have had loads of different medications over the years some good and some not so good, I think sometimes it's more a case of trial and error. I keep cheerful though the use of steroids has caused me to have some spinal degeneration.
I like to keep as cheerful as possible so I don't tell my friends the whole story for fear of them thinking I'm a hypocondriac or something so it's so nice to talk to you guys as you understand completely.

cheryl_v · Posted: Tue Aug 05, 2008 10:34 am Post subject:

Lots of us, probably most, have to deal with that. So talk all you want on whatever you want Smile

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Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)