Can we post pics of the face rash?

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

Just wondering if it is ok to post pics? just to get some opinions?

Smile

KathyW1958 · Tiger Joined: 12 Jun 2008 Posts: 810

I tried to put a picture on here but since I am new to the site, I have to wait 7 days and have 10 ligitimate posts from what the message said. Maybe someone can come along and help with this. Good luck.

Kathy
_________________
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

Numpty · Posted: Sun Jun 15, 2008 7:26 am Post subject:

I'd be interested in this too and would be more than willing to compare the horrible pictures from when I first showed the facial rash that I have ~s~
_________________
Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

oh ok, I need a couple more posts then Smile

I took some pics this morning after a shower, that is when the rash is most pronounced. I have feel pretty fatigued lately and foggy.

I think it is from that 30 minutes in the sun a couple weeks ago Rolling Eyes

Having the breakouts on my left temple under my hairline again also.

that is where my hair is thinning.
Mad

KathyW1958 · Tiger Joined: 12 Jun 2008 Posts: 810

Hi

I am wondering if you have been tested for Discoid lupus or have you been diagnosed with SLE. I know I am one of the ones that hung in limbo for years and years before they finally diagnosed SLE. What was weird is that I did not get the Malar Rash until right before I was diagnosed. I am also RO pos, so I don't know if that has anything to do with it I would like to see the pictures. Hopefully you will be able to post them. God Bless

Kathy
_________________
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.

Medications:
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

no official diagnosis yet Sad

just many symptoms. I have a negative ANA thus far...but the local lupus chapter here says that is not a for sure answer.

I have fibromyalgia...and have had photosensitivity for years....

The other day I had this weird mottled look on my arms and hands when I was in an air conditioned gym.

I have broken out in hives from air conditioning before also...but that has been a while.

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

just tried to post the pic, can't yet

Saysusie · Posted: Sun Jun 15, 2008 9:06 am Post subject:

Sorry guys, I know it is hard to wait in order to post pictures. But, it is one of the safeguards that Conrad put up (after a horrible experience with x-rated photos being posted) in order to protect our site. Confused

Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It!

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

this is also on my forehead...

Numpty · Posted: Mon Jun 16, 2008 9:05 am Post subject:

Is that rash lumpy luvpinkpeeps? It looks a little like the butterfly rash (no sure what the correct name is for that) although I don't know why it would be on your forehead.

I first got my rash after getting really badly sunburned.. it was the start of all my problems. Mine's appears on both cheeks and my forehead.. looks like I have some form of plague! ~l~

_________________
Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

It isn't all raised, just some spots.

I have read that the malar rash can appear on the forehead and the chin.

Which is the case in these pics. Always brighter after my shower.

DebbieE · Little Guppy Joined: 20 Mar 2008 Posts: 35

Was the molted look on your hands and arms something like this? http://www.londonlupuscentre.co.uk/images/graphics/ph13.jpg

If so, I have that too. Kinda narrows down what's wrong. It's unusual to be primary. It's almost always secondary to only a handfull of auto-immune disorders with IT being one of them. I took a pic of it and showed it to my doctor and of course he had no clue what it was as it is uncommon to rare. Took me over a month of searching to finally find it.

My molar rash doesn't show well in pics as it tends to be very light. It looks very similar to yours though luv, only it comes up and extends to the corner of my eyes and is also a touch on my forehead and my chin is totally covered with it. Washing my face almost always aggrivates it so maybe I can talk hubby into taking a pic of me after I do that.

Oh and if you want to know all about that nice thing happening with your arms, just send me a message and I'll tell you ALL about it and happens over time with it.

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

The mottled rash I had looked similar to that link's pic, but the white areas were much smaller.

here is a pic of my forehead -
it extends up into the hairline sometimes.

mnjodette · Posted: Tue Jun 17, 2008 2:48 pm Post subject:

luvpinkpeeps, my rash looks (or looked....I don't get it real often now) very much like yours and also got worse with hot showers or washing my face in hot water. I had traces of this rash years ago, and it was the first thing that caused by PCP to order a test to check my ANA level. That was years before I was diagnosed, though. My rash wasn't reall bumpy either - just in spots. I've also gotten a rash on my chest in kind of a 'v' shape. It looked a bit like I had been out in the sun in a v-neck shirt, even when I hadn't.

Jody
_________________
"Always laugh when you can. It is cheap medicine." Lord Byron

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

Thank you for replying! I wanted some opinions form those of you who have or have had the malar rash. Smile

It s one of those things that isn't present like this, when I have visited a doc. Rolling Eyes

I will take these pics in when I find a rheumy.