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SwirlyGirly
Little Guppy
Joined: 08 May 2008
Posts: 35
Location: Central Valley California
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 Posted: Sun May 18, 2008 8:51 pm Post subject: |
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Hey sick n tired, do you know you can get a note from your doctor saying you have lupus, you can get a front of the line pass at disneyworld and disneyland? I would recommend getting the wheel chair. If you don't need it great, but if you do want it it will be a blessing!
Faith, yes it was 102! Where did the humidity come from?? I used to live in Louisiana and I thought I left that sticky sweaty stuff there! I stayed indoors all day. I've been really achey everywhere. I even sat in a cool bath tub for an hour just to escape a bit. I hate the summer!! I'm already planning a trip to Seattle to visit my brother this summer!
Want it gone: have you done more research on FM? I know it gets intimidating and takes a while to mentally adjust. Hang in there!! *soft hugs*
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~SwirlyGirly~
California
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sick n tired
Bear Cub
Joined: 18 Nov 2007
Posts: 610
Location: Texas
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| Posted: Sun May 18, 2008 9:30 pm Post subject: |
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Hey Swirlygirly,
I didn't know that a note would do that. We are thinking about getting a wheelchair and taking my cane. I feel soooooo old talking about that... I think that they rent them there. I will be seeing my rheumy Tuesday and I will ask him for the note. hehehe feels like I am back in grade school needing a note from my doc...
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I have promises to keep and miles to go before I sleep, and miles to go before I sleep.......Robert Frost |
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WantItGone
Big Hamster
Joined: 25 Mar 2007
Posts: 98
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| Posted: Mon May 19, 2008 5:09 am Post subject: |
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| SwirlyGirly wrote: | Hey sick n tired, do you know you can get a note from your doctor saying you have lupus, you can get a front of the line pass at disneyworld and disneyland? I would recommend getting the wheel chair. If you don't need it great, but if you do want it it will be a blessing!
Faith, yes it was 102! Where did the humidity come from?? I used to live in Louisiana and I thought I left that sticky sweaty stuff there! I stayed indoors all day. I've been really achey everywhere. I even sat in a cool bath tub for an hour just to escape a bit. I hate the summer!! I'm already planning a trip to Seattle to visit my brother this summer!
Want it gone: have you done more research on FM? I know it gets intimidating and takes a while to mentally adjust. Hang in there!! *soft hugs* |
hey swirly,
right now, as we speak, i'm not only intimidated i'm irritated. i feel like crap. i have so much work to do and i'm just tired. tired and achy. my rheumy told me to try and distinguish lupus aches from fm aches. right now, i think it's lupus. just feels like it's mostly in my joints. but, the fatigue and just feeling of being worn down i'm wondering if that's attributed to fm. i do know my period is coming so i'm wondering if this is all attributed to the whole luteal phase. ugghhh!! i'm having a bad morning. hope you're feeling okay.
in answer to your question, i have done a bit of research. faith recommended a book, i went to borders and looked for it. i didn't find that exact book but found a bunch of others discussing lupus and fm. i'll go to barnes and noble today to look for the one faith recommended. |
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sits_inthe_corner
Lion King
Joined: 10 Feb 2008
Posts: 1228
Location: Nova Scotia, Canada
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| Posted: Mon May 19, 2008 5:32 am Post subject: |
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hugsss WantItGone
Sorry you are feeling so crappy:( gentle hugs to ya.
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Oh look ... a cookie |
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SwirlyGirly
Little Guppy
Joined: 08 May 2008
Posts: 35
Location: Central Valley California
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| Posted: Mon May 19, 2008 8:45 am Post subject: |
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Want It Gone: I'm sorry you are feeling so crappy! For me there is so much cross over between the lupus and the FM I don't know what causes what most of the time. Since both lupus and FM can cause extreme fatigue, I dunno.
These book makers need to get smart and start doing books on tape of lupus and FM books. They would sell tons because most of us are just too tired to actually read the books!
I'm having a very slow morning. My feet feel like they are fused in concrete. I can't move my toes and I'm walking like Frankenstein's monster. I'm dreading trying to put shoes on. I'm glad I just have one meeting today and I'm done. Too bad the meeting is an hour away. At least the weather is supposed to be only 99 today. YAY. It is even supposed to cool off later in the week to the 70's again!
Sending you great soft hugs and I hope you feel better as the day goes on!
_________________
~SwirlyGirly~
California
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WantItGone
Big Hamster
Joined: 25 Mar 2007
Posts: 98
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| Posted: Tue May 20, 2008 12:09 pm Post subject: |
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| SwirlyGirly wrote: | Want It Gone: I'm sorry you are feeling so crappy! For me there is so much cross over between the lupus and the FM I don't know what causes what most of the time. Since both lupus and FM can cause extreme fatigue, I dunno.
These book makers need to get smart and start doing books on tape of lupus and FM books. They would sell tons because most of us are just too tired to actually read the books!
I'm having a very slow morning. My feet feel like they are fused in concrete. I can't move my toes and I'm walking like Frankenstein's monster. I'm dreading trying to put shoes on. I'm glad I just have one meeting today and I'm done. Too bad the meeting is an hour away. At least the weather is supposed to be only 99 today. YAY. It is even supposed to cool off later in the week to the 70's again!
Sending you great soft hugs and I hope you feel better as the day goes on! |
Aww! I'm sorry. I am soooo totally agreeing w/you about the tapes. Not because I'm too tired to read but it'd just be more convienient. I feel really good today. I hate to even say that seeing that you're feeling crappy. My back doesn't hurt, no major aches, and I'm energetic. Thank God. I told my husband, I'm just treating this illness as a minute by minute thing. Not even day by day. It changes that drastically. So, I'm just thanking God for this many hours.  Hope you feel better sweetie!! |
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WantItGone
Big Hamster
Joined: 25 Mar 2007
Posts: 98
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| Posted: Tue May 20, 2008 12:11 pm Post subject: |
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| sits_inthe_corner wrote: | hugsss WantItGone
Sorry you are feeling so crappy:( gentle hugs to ya. |
Thank you for the gentle hugs!! They worked. I feel awesome today. I have minor aches but that's something I can totally deal with now. As long as I don't have that nagging back & neck pain, I'm alllll good. Lol. So, I'm better today. Hope you're feeling well today! |
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DrinkofWtr
Ferret
Joined: 12 Apr 2008
Posts: 101
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| Posted: Wed May 21, 2008 10:40 am Post subject: Zoloft Not Tolerated |
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I tried to take Zoloft, but couldn't tolerate it and kept getting diarrhea. Not sure of the spelling! Even had an episode at work, not good. Will try another med for fibromyalgia. See Dr. today. Seems like the side effects are worse than the cure on these meds.
There's always something to keep you hopping! |
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Faith
Cobra
Joined: 25 Sep 2007
Posts: 461
Location: California
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| Posted: Wed May 21, 2008 10:02 pm Post subject: |
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Hi Saysusie,
Yikes, 105 in the desert!!! I feel for you soooo much!!! This is the time of year I live on Crystal Light Slurpees.
I was dreaming a nice cool breeze along with an indoor misting system. lol.
It's nice tonight (75). It's supposed to last through the weekend. I hope you are feeling better.
Take care,
Faith |
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Faith
Cobra
Joined: 25 Sep 2007
Posts: 461
Location: California
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| Posted: Wed May 21, 2008 10:04 pm Post subject: |
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Hi Swirlygirl,
Are you getting any relief in Manteca? It's nice tonight; and I absolutely love it!!!! I just wish it would last all Summer. It was really sticky last weekend; I am not used to it.
I hope you are feeling better and keep us updated.
Faith  |
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Faith
Cobra
Joined: 25 Sep 2007
Posts: 461
Location: California
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| Posted: Wed May 21, 2008 10:06 pm Post subject: |
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Hey Want It Gone,
I am glad to hear you are feeling better!! It's nice to have a "good" day once in a while; just don't overdo it. You end up paying for it.
What is it like where you live? Hot, cool, hot and humid?
Faith |
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Faith
Cobra
Joined: 25 Sep 2007
Posts: 461
Location: California
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| Posted: Wed May 21, 2008 10:08 pm Post subject: |
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Hey Karen,
I hope you are feeling well and ready for your trip to Disneyworld.
I totally understand about the sleep. There are nights it's due to pain, and many other nights I just can't fall asleep. It's not fun!! At least I have company. lol.
Take care,
Faith |
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Saysusie
Moderator
Joined: 11 Nov 2001
Posts: 4152
Location: Victorville, California
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| Posted: Thu May 22, 2008 10:37 am Post subject: |
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Hi Faith;
Our hot temperatures were very short-lived. Probably just a clue as to what our summer is going to be like 
Today (Thursday), it is cold, windy, and raining! Go figure. Tomorrow will probably be sunny, with temperatures reaching 112...who knows. The weather has been so unpredictable this entire year.
I am feeling a bit better...finally. Thank you so much for asking.
How are you feeling? Well, I hope!
Peace and Blessings
Saysusie
_________________
Look For The Good and Praise It! |
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Faith
Cobra
Joined: 25 Sep 2007
Posts: 461
Location: California
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| Posted: Sat May 31, 2008 10:23 pm Post subject: |
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Hi Saysusie,
The weather has been heavenly since the cooler weather came in. We did have the rain; more like a Washington downpour. lol. I swished to the car in my sandals; got in and looked like a drowned rat. Water dripping from my face onto the carseat.
Though, the weather has been nice. I am praying it will stay nice for another 3 weeks; I know it's a dream. lol. My eyes haven't been as dried out in the cooler weather; so that's a positive. When we had that heat wave; I was actually considering duct plugs.
How are you feeling? I hope okay.
I have been okay; ups and downs. Everyone knows how that is. I take Klonopin for Fibro; though I can only get 7 hours of sleep per night. Then I am fatigued by the afternoon. I do not like the wall of fog!!
Talk to you soon and take care,
Faith |
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WantItGone
Big Hamster
Joined: 25 Mar 2007
Posts: 98
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| Posted: Thu Sep 11, 2008 12:16 pm Post subject: |
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Hey all!!
I'm having trouble again. I don't know, I'm taking neurontin 3 xs per day, flexerill twice a day (my rheumy told me to take it once @ bed time but my back hurts so much so I decided to take it in the morning and at bed time), and darvocet as needed. It just seems like I shouldn't be still experiencing all of this back pain w/all of the meds. I'm so depressed about it. It's just irritating and nagging. Any suggestions about alternative medications? |
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