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Saysusie....


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Saysusie
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Location: Victorville, California

PostPosted: Wed Jul 09, 2008 10:56 am    Post subject: Reply with quote

Sweet Oluwa;
Unfortunately, weight gain during prednisone therapy is quite common. The weight gain is typically due to a combination of factors: fluid retention, increased calorie consumption, and decreased physical activity. However, if your daily dose is 10mg/day or under, weight gain is not so much of an issue. But, for most of us, such a small dosage is not often prescribed.
Prednisone causes the body to retain sodium (salt) and lose potassium. This combination can result in fluid retention, weight gain, and bloating. With Lauri, we put her on a reduced sodium diet and increased her potassium intake through potassium-rich foods (such as bananas, cantaloupe, grapefruit, and lima beans). She still got the moon face, but not a lot of weight gain (however, for her, weight gain was a good thing).
Prednisone can also cause the redistribution of fat, which makes even a small amount weight gain more intolerable. The weight tends to be located in the face, back of the neck, and the abdomen.
When you start to taper your dosage, the weight gain also begins to taper down. The fluid retention and increased appetite will also decrease. Sticking to your healthy eating and continuing your swimming for regular exercise will be be a great help in keeping and taking off the pounds.
I know exactly what you mean by the emotional stress caused by weight gain! It is not our egos that makes this such an important issue to us...we've dealt with ED and still struggle with our dysmorphic issues. So, I truly understand.
No, Prednisone is not prescribed for Fibromyalgia. But, you mentioned how much better you felt when you were taking Prednisone, so I hoped that a small daily dose might help you to maintain that feeling. I am assuming that the prednisone was prescribed due to issues with your kidneys?
The edema in your legs.....you have brought this to the attention of your doctors? Here's the problem...the edema could be a result of your kidney problems OR a side-effect of the prednisone. Both can cause edema, but the Prednisone can cause fluid retention and edema. How long have you been off of the Prednisone?

I am so happy that you found Riley Mildred and that she was OK. That brought back many memories of searches we had to mount for our Pomeranian, "Hooter". She needs more attention and love and with you, she's with the right person for both.

Just saw "Hulk" and it was much better than I had expected (with Edward Norton, you'd have to expect a better). It actually had a story that was interesting. The first "Hulk" was a waste of celluloid and I was dead set against seeing this one, until my son told me that it was well worth the effort. These summer "Super Hero" movies are all set up for sequels and this was intimated at the end of "Hulk" with a brief appearance by Robert Downey Jr. as his character in "Iron Man".

None of these movies are going to be nominated for any type of award, but they are all fun movies which are entertaining. Right now, that's all I want.....don't want to think hard, don't want to be educated...don't want any political revelations....don't want to see love gone bad....just want some absent minded fun!!!! Very Happy

I hope your back does not trouble you too much. Not much that I can do to help you, but I truly wish that I could. Know that I am ALWAYS wishing you well. Have a wonderful day and a peaceful and restful evening and night!

Peace and Blessings
Saysusie
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Oluwa
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PostPosted: Wed Jul 09, 2008 11:45 pm    Post subject: Reply with quote

Hey Saysusie..Our sweet Teacher...

When I was on a regular dosing of scaryroids it was for kidneys, protein spilling in ....but that was quite a spell ago in Seattle...this dose pack was for my spine.

I have high cheek bones, so when I dose with steroids I get huge apple cheeks, not half apples either, the whole round...

Do you think we get the moon face, because of the type of facial tissue...weird how it gravitates to the face.

I stopped the taper pack, I think it was Saturday...the swelling has resolved on it's own. Times that happens out of the blue. I don't do much salt intake...shake or hidden in foods. As a whole I eat mainly fresh..only canned tuna or salmon and frozen peas with a few granules added.

I will ask my RheumBA on the 6th what he thinks about the small dose because that would make a huge difference in my lifestyle, that the joint pain has become my norm but it is wearing.

I'm still swimming like a fish. I feel the muscles under my hard lard (fat)...I will have to cut my eats by a 1/4 to shed this extra 5 pounds I just tossed on. I blow up so easily...maybe it is menopause and I do not have Amenorrhea.

Hopefully on the 6th as I also have an appointment with a new GYN, maybe she can provide something. It feels odd down there, I know it is there...it is not like being just there like an organ, like a lung..I feel it...swollen, achy...crazy...

Knocking my ailments off one by one. My stomach feels like, well it doesn't. It pangs when hunger and tells me when full, normal..compare to a year ago...what an event that was. Oh, I meant to tell you the hot, warm sipping does create a soothing feeling down there. No pain. I still dose with Protonix, trying to go without on and off for the last several weeks. Tomorrow I will try again.

PT was fabulous...they have this TENS unit type of equipment. It is like a millions tiny hands massaging. I would love to have one of those in my home. I had a small TENS unit, but it just sent zaps in and out, in out..but this unit..it was so synchronized, with 4 large pads that it literally felt like a massage...then with heat..oh, it was heavenly.

I could see strapping that on my thigh, on my shoulders...on my calves. I wonder if they make home size...

Stomach done, soon to be my girlie, next my spine...with those three ailments gone, behind me, I should be able to arm wrestle IT without a struggle....

I really believe the almost daily swimming, my eats, rest is what is keeping IT at bay, from swallowing me whole and keeping my spirits way up there. My spine seems such small potatoes when my spirit is high...

Living in the moment, realizing each moment, being grateful for each one is key for me. Thank you for helping to realize that. Before I worried about the day, if I didn't wake feeling well, I felt the whole day was shot.

I hear you on the absent minded fun...sometimes I just want to turn the volume down on life. Times everything seems to be screaming at me, the TV, news, IT...newspapers, Internet...buy me, sell me, analyze this, no this way...he said, she said..spin....I feel like I am in an office chair, and I being pulled, pushed and spun at the same time....

Getting antsy being housebound? It'll do you body good...feeling much better?

Recording a new CD anytime soon?

Insomnia...I have, I attempt many times to return to bed and curl-up tonight maybe this time it will work...off to lalaland....z-z-z-zzzzzzzz. I hope.

Night..Morning, Saysusie...
Love,
Oluwa
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PostPosted: Fri Jul 11, 2008 10:57 am    Post subject: Reply with quote

Hi Oluwa #Lil angel
I think that the moon face is due more to the redistribution of fat caused by Prednisone. I suppose that most of our face is made up of fatty tissue so, it stands to reason that the fat would redistribute itself there. Lauri also had the fat redistribution on the back of her neck, between her shoulder blades (the buffalo hump). But, it was almost unnoticeable (except to her, of course). The truncal obesity is something that we can't seem to get around Crying or Very sad
I hope that your doctor will consider a small dosage of Prednisone, just so that you can feel better. You might want to talk to him about a small dosage of Methotrexate (Rheumatrex) or azathioprine (Imuran) if you and he are not really comfortable with the Prednisone or in conjunction with the Prednisone so that you can keep the dosage small.
I remember you speaking about the issues that you had with your kidneys. I wasn't quite sure if you were still having kidney issues or not, but I know that you are having some serious issues with your spine and I really hope that you can find a medication (or a combination thereof) that will give you relief and help ease the pain.
Being housebound was causing me to "nut up" just a little. So, my hubby relented and let me go to the pool yesterday evening. Oh, was I so happy to be in the water. My best friend went with me and, after only 35 minutes, it started to rain!!! Unbelievable!!! But, at least I got out of the house and into the water
Very Happy
I agree with you, our daily swimming, eating right and getting rest does a lot to help us deal with and manage IT (& IT's first cousin..FM). Even tho it seems as if when one thing calms down, the other decides to rage! But, we just keep doing all that we can to stay on top of it and to get some enjoyment out of life. I think that if I could not get into the water, I'd just blow my brains out!!!! (ok..that was an over-statement - but you get my meaning!)
Today is Friday; a bit overcast and still hot! The weekend is upon us and I might be allowed to go to the farmer's market! That sounds exciting to me, after being cooped up all week Laughing

As you said, we are "living in the moment, realizing each moment, being grateful for each moment" That is how we must live our lives, to "Look For the GOOD and PRAISE IT!"

Have a beautiful weekend, sweet angel, keep floating and keep enjoying the moment....all weekend long!

Always
Saysusie
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PostPosted: Sun Jul 13, 2008 2:34 pm    Post subject: Reply with quote

Hey you,

Water to us is like a libation, eh? We need the daily ritual...though lately I have this rash and have been avoiding the water for the last few days...

Cheek to cheek...rashed, dried, itchy...dunno know what to make of it. Had it since Wednesday morning. I tried all my tricks, nothing has worked...hummm.

We had seen The Hulk....it was pretty good with my Raisinettes and H20. I will give it three corns out of five. Hancock, next on the list....

Did you make it to the farmer's market. The market is small here. They usually take place in a parking lot on a certain day of the week. Maybe with the people growth they will actually create a waterfront market..that would be lovely. The market downtown Charleston is somewhat like a new merchandise flea market. Junk. Though they do make beautiful Sweet Grass baskets, urns, containers, wall mounts...other than those items, pretty much junk, t-shirts and etc. Tourist stuff.

Hope you had a lovely weekend. The weekend is over, but we have five whole days for the weekday to enjoy.

Love..hugs,
Oluwa
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PostPosted: Mon Jul 14, 2008 7:38 pm    Post subject: Reply with quote

#Lil angel

How is your rash? Is it the Malar rash? You mentioned that it was cheek to cheek, raised, dried and itchy. This actually sounds more like a discoid rash than the usual malar rash. However, it has been found, lately, that persons with SLE can also have discoid rashes (this Lupus just keeps "mutating").
It has not responded to your usual tricks Crying or Very sad I completely understand you wanting to avoid the pool until you can deal with this rash.
I did make it to the Farmer's Market. My mother came with me and we had a very pleasant day (aside from my concern about her diabetes). We sat with our feet in the pond and listened to a band play oldies but goodies for almost an hour. I was so happy to be outdoors and in water (even if it was just up to my ankles) that I was dancing in the pond. My dancing garnered the attention of several other people who took off their shoes and came to dance with me. The Band even had to give us a "shout-out" and called us their "water dancers".
But, as has been my bane lately, I suffered all day Sunday for my frivolity on Saturday Confused Oh well!! But, I've decided that I will just have to pay the piper 'cuz I cannot stay cooped up in this house, day in and day out! I will do all that I can to protect myself and take all precautions. But, I cannot let the nausea, fatigue, achy muscles, etc. that I suffer afterwards stop me from enjoying some simple things in life....like hanging out with my Mom at the Farmer's market!
I hope that you are able to get some rest tonight, that your Monday was peaceful and relatively pain free, and that you find a way to deal with your rash so that you can get back into the water!

Peace and Blessings every day
Saysusie
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PostPosted: Tue Jul 15, 2008 6:07 am    Post subject: Reply with quote

Hey you...Saysusie...

The rash is from face cheek to butt cheek. Mainly allover my neck's front and back, like a turtle neck...upper back, jawline.... chest, breast and the front and back of my biceps. Patches on my forearms, stomach, below the belly button into..er.ah..into my other patch.

I clipped my nails right to the quick..the nails are too short now and burn and so does the rash. It is dry...It itches just around my neck and my pelvic area though the other areas are massed with red pinhead size bumps too. Gazillion..some bigger than a pinhead. I wonder if warmth from my hot flashes aggravates those two areas where it itches the most...hummm..

I 'll check out the discoid rash snaps online and see if it looks like that.

Rash or no rash, I am still in good spirits. I don't get depressed about IT anymore and what it does, but IT does make me upset, g-r-r-rr--rrr when it doesn't give us a moment of rest without inflicting some type of horror movie affect, a new surprise. Then I am over the anger...and live with IT.

Oh, that sounds fun, splashing in the ankle deep pond water...enjoying the day, your Mum and the music, like two little girls...wooohooo.

I am getting a bit shack whacky myself...that running around till I am raggedy sounds inviting. I've been scared straight lace from the flares so, I have been living like a mole. I do get bored...Caring for me is boring.

Another session of PT today...third one thus far. It seems to be working and at home I perform my instructed stretches. Hoping that herniation gets sucked back in...absorbs into me. It isn't impeding on any nerve..just a whole lot of inflammation in the spine. Doesn't seem to tire as easily and the burning is now to a warming, tepid.

Another beautiful day in Carolina...rained last night, hope the humidity isn't high today....

Have you recover from Saturday's fun....hope you have and are able to enjoy today. I am off to find something not so safe to do....tata.

Hugs.
Love,
Oluwa
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PostPosted: Tue Jul 15, 2008 8:12 am    Post subject: Reply with quote

Sweet Oluwa;
No, I still have not completely recovered. Another movie day on the couch 'cuz I hurt all over and I feel like (as Rob described it) I am lying under a lead blanket......can't seem to move. Like you, I try not to be angry when a simple activity lays me low for days. Even my 78 yr old mother was able to go out on Sunday and work in her garden, drive to the mall and do some shopping and come home and clean her house. Me....no.....I had to stay in bed all day Sunday, Almost all day Monday and be house-ridden all day Tuesday. There just does not seem to be any fairness in that at all.
Did you find pictures of Lupus rashes to compare with yours? Have you called your doctor about the rash? Let me know if you'd like me to do some research for you. Your pool is saline right? So, we can't say that chlorine has aggravated your rash (just a thought, even tho I've never heard of that happening). I do hope that you are able to find out exactly what it is and find a way to relieve the itching.
So, just FYI, here are some descriptions of some Lupus rashes:
Discoid rashes occur in patches across the body. These patches tend to be well defined, thickened and scaly, they are slightly red in color and can itch. The appearance can vary between people and also on different areas of the body on the same person. As the patches heal, they tend to leave scars and on darker skins, the pigment in the skin can be lost leaving white areas.
The problem is that almost any type of rash can occur with Lupus, ranging from widespread mild rashes similar to those seen in German measles, to small distinct patches of rash on the elbows and knees resembling psoriasis. There are, however, three particular problems that can occur with Lupus and they are shingles, panniculitis and urticaria.
Shingles may occur anywhere on the trunk of the body. Initially, red patches of rash develop into blisters. Because the virus travels along the nerve to the skin, it can damage the nerve and cause it to become inflamed. Shingles usually affect persons who have had Chicken Pox. Many individuals who develop shingles do have an underlying malignancy or other immunosuppressive condition, such as Lupus. The first sign of shingles is often burning or tingling pain, or sometimes numbness or itch. After several days or a week, a rash of fluid-filled blisters, similar to chickenpox, appears. Shingles pain can be mild or intense. Some people have mostly itching; some feel pain from the gentlest touch or breeze.
Panniculilis is inflammation of the fat below the skin resulting in tender red lumps beneath the surface of the skin; these heal slowly over time and can leave dimpling of the skin when they do fully heal. In nearly all cases there are deep, erythematous plaques and nodules, and some ulcers, which usually involve the proximal extremities, trunk, breasts, buttocks, and face.
Lupus panniculitis is often treated with antimalarials, such as hydroxychloroquine (200 mg once or twice a day). Sometimes, a combination of antimalarials (for example, hydroxychloroquine 200 mg and quinacrine 100 mg daily) has to be used when monotherapy is ineffective.
Urticaria (aka: hives) is an itchy raised red rash similar to nettle rash that can occur with vasculitis or on its own; it heals without leaving scars. This rash is marked by the onset of hives associated with pruritus. The eruption is symptomatic and can be visually apparent over many different parts of the skin. Uticaria can last from a one-time event of several hours' duration up to 6 weeks. If urticaria is present continuously over a 6-week period, it is categorized as chronic urticaria.

Whatever you rash is, I hope that you get some relief very soon. I'm glad that physical therapy is helping you. It did wonders for me and, like you, I am very diligent about doing the exercises at home. How many PT sessions are you to have?

Hope your day is joyful and that you do find something "not-so-safe" to do that does not come back and bite you Razz
Have a blessed day my friend!

Always
Saysusie
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Oluwa
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PostPosted: Tue Jul 15, 2008 2:19 pm    Post subject: Reply with quote

Dear Saysusie..

Ugh...sorry another day you feel like crapolla. You are right it isn't fair..sheesh how much does IT want from us, eh? All of me?

PT was nice again today. My prescription didn't say how many sessions. My insurance allows 75. I'll go till I say all better.

My event for the day to cure my shack whacky was seeing Hancock. It did mess with the emotions..a chuckle, a sigh of relieve, empathy. I must say Will's acting in the beginning to me, seemed like acting..if you know what I mean. He doesn't play a very good angry drunk. I enjoyed my mental visual of him doing you know what with a head...I roared...and all the 7 other people in the theater roared too. Only eight of us this afternoon at that movie...I think I will see Wall-E next....

I did a bit of research on my rash. I don't know what to make of it...A case of cutaneous lupus or just some crud I found somewhere. From the snaps I had seen it doesn't look like discoid lupus. I will give it till Thursday and do a walk in on that day. I believe my Primary is in till 8PM...

I just hope it is a reaction to something other than lupus related. The snaps I had seen made me cringe and feel for those people who had their eyes covered in the photos....sigh. Mine looks like some of them, but not as intense as in redness...

Our pool is saline, salt..maybe if it is a crud, it will dry it out...I am trying to take tender care of it so it doesn't mar me...

Did I ever mention I get like a huge hive right at my ear lobe where the indent is on the neck. I had one there last weekend...hummm. I took a snap of it. I will see if I can pop one off on my rash and email both to you...Have I ever sent a snap of me?

Rain clouds are in the making here, I can here the sky making them, thunder...gives me a reason to stay inside...

Well, I hope you were able to find yourself, energized after being under the lead blanket today...it gets old layin' about, eh?

I became an Auntie today...my sister in-law had a girl..They reside in Nigeria. The baby won't be named for 7 days...It is a ceremonial tradition in Nigeria.

That has been life today in SC...how about in CA...

Enjoy the night...be well, Saysusie...

Love,
Oluwa
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PostPosted: Wed Jul 16, 2008 9:23 am    Post subject: Reply with quote

Sweet Oluwa;
Doing much better today! Still some aches and pain, but the lead blanket has been replaced with a spongy straight jacket. So, not perfect, but good enough to move about. I have been cleared to go to the pool this evening....yipeee #Afro
I'm glad that your rash is not as serious as some that you saw. I'm also glad that it doesn't look as if it is Lupus related (aside from the hive at your ear lobe! - that must be painful and annoying at the same time). I think that it is a good idea to see your doctor on Thursday if there has been no change. Perhaps it is an allergic reaction to something and can easily be treated.
I have to agree with you about Will's acting in the beginning of the movie. I felt something was missing, but I couldn't put my finger on it. But, I am such a Will Smith fan that I'm afraid that I am too biased to give accurate critiques of his work Razz
We saw "Journey To the Center of the Earth 3d" yesterday. On a scale of 1-10 (10 being best), I give it a 5, due mostly to special effects! Next on our list is the "HellBoy" sequel (although the first one left a lot to be desired) and then "The Mummy" sequel.
I hope that you enjoy Wall-E. Please let me know what you think of it because I promised my God daughter that we would go see it this weekend if I was well enough.
Many congratulations on becoming an AUNTIE!!! Please share some pictures when you receive them! This seems to be the year for baby girls!
Have a wonderful day today in SC. It is a clear, hot sunny day here is SoCal's High Desert. Temperatures in the three digits again Crying or Very sad so we will pretty much hibernate until this evening.
Take care and don't forget to let me know how it goes with your doctor about your rash!

Peace and Blessings
Saysusie
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PostPosted: Wed Jul 16, 2008 11:20 am    Post subject: Reply with quote

Dear Saysusie...

Maybe the pool will remove the straight jacket. I hope so. After I see the doctor tomorrow and hear what he has to say, I will swim again. I miss it.

I do have prescription steroid cream, but it says not to apply to a large area...maybe he can give me a pill...

I watched Hellboy on TV the other day so, I can go watch Hellboy II and know what it is about at the theatre...I need to watch Mummy I and II. The adverts for III seem liked a good flick.

I think with Will..it was how he puckered his mouth and made a snagged top lip up to display his anger and drunkenness. He looked like the expression of something stunk. Didn't look right. My husband kept poking me, saying it looks weird. Then when Will went straight, hero mode..he looked normal...

Keep cool...
Hugs,
Oluwa
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PostPosted: Thu Jul 17, 2008 9:05 am    Post subject: Reply with quote

Oluwa;
How are you feeling this Thursday? How was your doctor's visit? Any diagnosis on the rash? What type of treatment has he prescribed?
I did swim yesterday evening and it was just what I needed. My friend could not join me, so I was in the lap lane by myself. I do a lot of thinking when I'm swimming alone and I resolved some issues (in my mind) that had been causing me stress. One of which was, I had to let a long-time friend go. She was becoming a bit toxic for me and I've been trying very hard to understand her. But, I just have to let her go. Now that I've made the decision, I feel more at peace...funny how that works?
I hope that things went well with your doctor. Can't wait to hear from you!

Peace and Blessings
Saysusie
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PostPosted: Thu Jul 17, 2008 1:12 pm    Post subject: Reply with quote

Saysusie..

I know what you mean by a toxic friend. The friend, best friend of almost 20 years, why we moved to SC, I had to choose to discontinue our friendship. A friendship based on untruths from her. Being so close to her daily while having our home built, I had seen her for the first time. It hurt..I felt betrayed. I didn't know what her truth was anymore...I don't think she did either.

The person who was my friend was a fable, a story book, a facade, the girl I knew never existed...who knew..and like you I feel so much better..I no longer tried to compute the reasons why. Once gone, I had no more reason to talk about her.

I too swam yesterday...oh, oh..I enjoyed so. I missed it.

I was diagnosed with Asteatotic eczema...aka as the French say...eczema cracquelée”. Well, I sure don't look like 90 year old womens shins. Maybe the early stages of it, I do. He prescribed Locoid Lipo 0.1% cream, steroid and to keep it lubed with emollients.

I asked him if it was the same as "eczema" he said no. I do have eczema but it is inactive. It came out while I lived in Hawaii..it was a patch the size of a teaplate on my calf. I left it be, would redden up in the sun, the usual. When I left Hawaii, it left too..or did I leave it there...hummm..

PT was great..complete relief is on the way. I noticed such a difference when I went swimming last night. I could lift my head up like a turtle while on my stomach.

So, that has been my Thursday..yours?

Hugs.
Love,
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PostPosted: Sat Jul 19, 2008 4:28 pm    Post subject: Reply with quote

Sweet Oluwa;
Well, I feel like an idiot!! My brother has Asteatotic eczema on his ankles and calf areas. He also has severe Atopic eczema with hay fever. Here I was trying to relate your rash to Lupus and never once thought about the rash that I've seen on my brother all of his life!
I'm glad that you got a diagnosis and a treatment. I hope that the rash clears up and that you start feeling better Laughing
My friend was always kind and considerate when she was single, but when she became engaged, it was like she no longer needed me and that I was a hindrance and/or a burden to be around. She would say little hurtful things and I was being left out of events that I had always participated in before. This treatment got worse right before the wedding (which I didn't know about, was not invited to and had to read about in the newspaper).
My hubby says that, when she was single, she needed me because I was always helping her out financially (she had four children and was living on only social security DIB {she is blind} and child support). When she got engaged, she resented me for some reason, and no longer needed my help or my friendship. He also feels that there was some jealousy issues going on. I find this happens too often and I have to say that I would not wish the events of my life on my worst enemy. How could anyone be jealous of me? Please do not judge me by my home, my car, my clothes....you have no idea how much heartache I have suffered and you would not want to suffer those same heartaches!!!
Anyway...I'm ranting...I apologize Crying or Very sad
Today is Saturday and, so far, the weekend is turning out nicely. My dearest and best friend threw her back out at work on Friday and is laid up. I've been with her most of the time doing her "running and fetching". But, we've been talking and laughing and watching the "Monk" marathon that she taped. So, I'm in a fairly good mood and on my way to the pool as soon as I put a period on this paragraph.

gone!
Peace and Blessings and have a very restful (itch-free) weekend!
Saysusie
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PostPosted: Mon Jul 21, 2008 7:21 am    Post subject: Reply with quote

Dear Saysusie..you may feel like an idiot, but know you are a far cry from one...

I too was thinking Lupus...but you know I don't even think that was a correct diagnose. It cleared up after one days of smearing the Locoid. The more I think about it I think it has to do with swimming with a T-shirt on....naked is my next option. I was doing the T-shirt over my suit to ward off any sun rays...Today I will not don the cover.

I didn't make to see Wall.E..did you? We went to see Hellboy II. I dozed in and out during the flick. Wasn't because it was dull, though what I did catch was a bit cheesy..it was because I've been having increased fatigued. Extreme exhaustion is settling in..flaming? Maybe. I was so tired I could even eat our early dinner out. Doggy bagged it and came home and slept...

I am still exhausted and I have done nothing to warrant a flame...just because it decide it would be so.

I am sorry what your "friend" had did that to you, had made you feel bad. It hurts...age 7, 27, 47, 57...no matter the reason. People can be jealous of another, but it should only last as long as the nano second it took to pop into there heads.

Shame people continue with those feelings, jealousy instead of turning them into admiration. I can see why many would admire you...you are beautiful inside and out, giving, kind, caring....

Their insecurities, their self loathing, their envies doesn't allow them to admire anyone, but to cut down what they do not have. People like that are easy to come by, and when you find one who admires you, you admire them...it is a good find. A good friendship...

My husband departed this morning for Boston....returning in two Fridays. he is going to see he he can sneak away for the weekend and come home.

Maybe I will strum up a bit of energy to pull the spandex on and go for a dip now...

A new week....lets forget about past friends and enjoy the ones we have with us now..

Love,
Oluwa
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Saysusie
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Joined: 11 Nov 2001
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Location: Victorville, California

PostPosted: Mon Jul 21, 2008 7:49 am    Post subject: Reply with quote

#angel Oluwa;
Yes, I agree....let's forget about yesterday and concentrate on today. As my Mom says..."Live in the moment; you can't undo the past and you cannot predict the future, so make this moment - right here and right now- the best moment of your life! Give Love in this moment, spread joy in this moment, be grateful for this moment and give thanks for this moment!"
I am SOOOO happy to hear that the rash has started to clear up. I understand the need for the T-shirt, however. Seems to be a bit of a predicament; protection from the sun vs getting exercise - how does one find a happy balance?
I, too, have those days of extreme exhaustion without many of the other signs of a Lupus flare. I, personally, usually put it off to my FM Confused I do hope that you are not heading for a flare-up. Since your hubby is gone, perhaps you can just take a day to rest and care for Oluwa, in order to avoid a flare and to, hopefully, be a bit healthier when he comes home.
We never made it to the movies either (nor did I make it to the pool all weekend). After I put a period on my last paragraph in the previous post, I stood up and went right back down again. So, I was housebound Rolling Eyes My sister-in-law brought over movies and he watched horror flicks all day Saturday and Sunday.
I hope that your week begins on a good note, I'm glad the rash is clearing up and I pray that you DO NOT slide into a flare-up.

Peace and Blessings
Saysusie
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