Do you tell other people about it?

ruthie213 · Posted: Fri Apr 11, 2008 9:12 am Post subject:

this is something i have struggled with, my tutors at uni know, but i dont tell my work where i also do my placement, am i being nieve that im going to be able to carry on with my studies and get a full time job when i graduate, i think it would really depress me if i couldnt have a semi normal life, i have already had to cut back on so much, i miss the once active me before i started getting major symptoms

AnnMarie · Little Guppy Joined: 02 Dec 2007 Posts: 39

Ruthie.

Keep going to school and studying. You could improve, and the progression of medical based science may bring a cure or something close to it.

We need good, compassionate teachers!

Annmarie

sick n tired · Bear Cub Joined: 18 Nov 2007 Posts: 633 Location: Texas

Ruthie,

No I don't think that you are being naive when you try to have a job after school....many of lupus people have jobs. It might be harder at times but if you are able it is doable. You can't stop dreaming....dreams can be like hope....I need hope to go on and we do have the hope and dream, if you will, that a cure is around the corner.

I do know the grieving process that happens...it is hard when you are young to have to cut back..I am sorry that you are down about that. You are going to find a new "normal" for your life and be able to fit it around. I have a daughter who is making plans to go on with her life and finish university and become a nurse....I know that the future is not as clear with her as it is with most college kids...but I am glad that she is trying to pick up her life and go on and dream....

I hope that you are having a better day,

Karen
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I have promises to keep and miles to go before I sleep, and miles to go before I sleep.......Robert Frost

sits_inthe_corner · Posted: Sun Apr 13, 2008 3:03 pm Post subject:

Ruthie

You can do what ever you want. The important thing is you take care of your health while you're doing it.

My sister works full time and she's a hockey mom Shocked

nothing holds her back. She's in remission for the lupus, but that wasn't always the case, plus she has ceiliacs which has it's own issues.

I worked for 15 yrs as a special needs teacher. And now I work as an office admin.

Just listen to what your body is telling you, sure you can follow your dreams. What else have ya got to do? Laughing

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Oh look ... a cookie

mnjodette · Posted: Sun Apr 13, 2008 3:22 pm Post subject:

This is an interesting thread! It IS awkward to tell some people. Everyone at my office knows because I got very sick and ended up in the hospital, several times in a short period. I've worked there for 20 years - I know them all very well and had to tell them. They've been great, and even worked with me to 'design' a part time job that I could do instead of the 'pressure-cooker' position I had been in. That's going above and beyond for someone!

Others? I don't know - I think the 'need to know' basis is the right response. I think you know when the time is right to share that kind of information. And sometimes it's just necessary.

Everyone reacts differently. Some are really kind and concerned when I tell them. Others have almost no reaction at all...sort of "Oh? That's interesting." Lots of people will want to share what they know about someone else who has lupus (or some other related disease.) Some people behave like I'm dying; other's behave like it's no big deal.

My hubby, interestingly, seems to tell people more often than I do, and he's more likely to give updates to friends and family. I think it's his way of coping.

We all have to do what's comfortable, I guess. No right or wrong answers here.

Jody
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"Always laugh when you can. It is cheap medicine." Lord Byron

sick n tired · Bear Cub Joined: 18 Nov 2007 Posts: 633 Location: Texas

Yeah Jody,

My hubby is the one who talks about it more, too. I never thought that it was a coping method...hmmm...very interesting, I think you are right. Smile

Karen
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I have promises to keep and miles to go before I sleep, and miles to go before I sleep.......Robert Frost