Low body temperature

laurid8967 · Posted: Sun Jun 08, 2008 6:14 pm Post subject:

OK, count me in too for the low body temp. My docs ignore it too. Once (I felt soo ill) the nurse took my temp and said, "looks good, its 99.2!) I said, that is a fever for me, my body temp is always really low. She said, a bit later in the conversation, "Well at least we know its not an infection, because you dont have a fever!!" Hello? Just one of MANY things of mine that docs have brushed off/aside. I dont think my temp has gone above 100 in YEARS, even with severe infection, pneumonia etc. And when I feel relatively symptomless, my temp is really low. So, for me, its almost like I always hve something going on, as it hovers around 99 most of the time. I can actually admit that I once lied over the phone to the docs when they said "Do you have a temp?" I knew if I got into the whole "low body" temp thing with them, they would dismiss me, so I lied and said it was 101 so they would agree to see me. Man, what we are reduced to doing when we are trying to get diagnosed!! Take care all -
Lauri
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God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference...

Oluwa · Posted: Mon Jun 09, 2008 4:35 am Post subject:

We should print this thread and show our doctors who don't believe, who ignore.....that 75 people with IT have a low temperature...

cheryl_v · Posted: Mon Jun 09, 2008 4:39 am Post subject:

Wow, that many!? Shocked

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Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

Oluwa · Posted: Mon Jun 09, 2008 8:32 am Post subject:

Cheryl

I did an estimate by the number of replies to my question and that is just here. There must be masses.

Before my norm was 99...today my norm is 96....

L.,
O

cheryl_v · Posted: Mon Jun 09, 2008 10:02 am Post subject:

Same, was 98-99. Now always 96.
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Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

katinar · Posted: Mon Jun 09, 2008 12:52 pm Post subject: Lo body temp

Hi
When the disease is "more" active my body temperature is all over the place. Normal body temp for me is 97 or less. I can be freezing when everyone else
is hot, conversely when I get a little overtired I start burning up. Thyroid etc is normal. Personally, I think the disease just messes with the body's ability to regulate and respond to both internal and external factors.
I have had lupus for 30 years and have yet to hear a reason for any of this.
Katina

luvpinkpeeps · Tadpole Joined: 01 Jun 2008 Posts: 20

wow, my mom always had a low body temp...just another clue that we believe she had undiagnosed lupus.

livingINmyDayDreams · Tadpole Joined: 25 Jan 2008 Posts: 24

I'm always cold too. Before they diagnosed me with lupus I was fine but now I'm always cold. My friends will ask me how I'm cold becuase it will be the middle of the summer and I'll wear a sweatshirt around the house. When we go to football games and things I'm the one who stands there shaking ha ha. They'll be cold too but I'll be freezing. I blame it on Lupus, because I seriously think that's what it is.

cheryl_v · Posted: Thu Jul 10, 2008 6:34 pm Post subject:

I wouldn't doubt if it was lupus, IT causes so much. By the way, love your screen-name Very Happy

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Cheryl

To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe)

bunker_57 · Posted: Thu Jul 10, 2008 8:58 pm Post subject: Low temp

I have low temps, 96.4 is normal for me and as others have said 99 is high and I feel sick. I also have raynauds and my feet hands and nose is usually cold. Had a hysterctomy at a fairly young age and now at 50 I seem to have one awful case of menapause, hot flashes non-stop. Will break out in a heavy sweat, just walking across the room, and we have central air. Two minutes later I will be cold. Not sure if that helps, but between the lupus and the menapause, my body is totally confused.

laurid8967 · Posted: Fri Jul 11, 2008 8:51 am Post subject:

LOLOL - I get the sweats something AWFUL, and Im NOT in menopause (offically checked by doc). Then it stops and my body feels ICE COLD ..brrr. I find I sweat at night on and off, and have been lately. I thought the steroids may be contributing...Have had to wash my sheets and pillowcases (its my head that perspires the most - weird?) constantly.
Thinking back, I cant tell you how many times Ive been to the doc, feeling like junk and saying, "I feel like I have a fever" and them saying "But, you dont"
THere are SO MANY THINGS that we all share, that docs know nothing about - its insane! This disease REALLY needs some research done...I read on the LFA website that there has been no new diagnostic tools OR new medications for lupus patients in FORTY YEARS!! That is nothing short of dispicable...Thus, we go years being sick without any treatment, treated like crazy people. Then, when we DO get diagnosed, the only treatments available are mostly toxic, and cause us even more symptoms. OK, Is it me?? This is a problem. But, you know, thank God that they found a cure for impotence....
Lauri
Lauri
_________________
God grant me the serenity to accept the things I cannot change,
The courage to change the things I can,
And the wisdom to know the difference...