 |
WeHaveLupus.com Lupus Erythematosus Support Forum |
|
|
| Author |
Message |
sits_inthe_corner Lion King


Joined: 10 Feb 2008 Posts: 1395 Location: Nova Scotia, Canada
|
Posted: Sun Feb 10, 2008 4:06 pm Post subject: I'm usually about 96 or if I'm warm 97. |
|
|
From my ankles down to my toes are freezing numb cold. When I go to bed my hands, nose, butt, and feet are so cold they hurt.
I recently purchased a memory foam mattress and polar fleece fitted sheets. While I'm still cold going to bed, by morning I'm toasty warm. Which makes if very hard to crawl out of bed to start my day. I love a hot bath, but it's frustrating because the water will feel burning hot to my feet hands and bottom, but the rest of me will feel the water temp as being cool, which is NOT nice. I hope you all can make your way through my terrible spelling and typos. |
|
| Back to top |
|
 |
alanah_hope Sea Monkey


Joined: 16 Dec 2007 Posts: 10
|
Posted: Sun Feb 10, 2008 10:52 pm Post subject: |
|
|
| i've been getting night sweats pretty much every night for the past two weeks, i wasnt sure if it was just like.. a phase, or something. it crossed my mind that it could be associated with sle, but i wasnt sure... me being 17 i'm seriously doubting the menopause = P but it isnt too troublesome i guess, just uncomfortable waking up all sweaty.. and i've gotten very much used to mild discomforts lately... |
|
| Back to top |
|
 |
Oluwa King of the Jungle


Joined: 23 May 2007 Posts: 1920 Location: SC
|
Posted: Mon Feb 11, 2008 7:21 am Post subject: |
|
|
I feel all greasy when I rise. Greasy with a cold nose and toes...hummm.
Maybe if we were all in one room, it would be a self generated sauna...
Being half Finnish, I know how hot they can really get. The one we grew up with was the authentic bathing house at my MooMoo's (Grandma's). Washed from head to toes ever weekend. A family affair.
Running well water, a firewood stove to heat the rocks. Benches, light by lanterns, cedar branches..and lots of steam.
The sauna is still used today...when I go up north for a holiday we say fire up the sauna and invite everyone. No silly, men with men, women with women...young old...bathe together.
I gave my Mum her last sauna bath...I miss her so much. I love you Mum.
Love,
Oluwa |
|
| Back to top |
|
 |
the_librarian Puppy


Joined: 15 May 2007 Posts: 203 Location: Raleigh, North Carolina
|
Posted: Mon Feb 11, 2008 8:43 am Post subject: |
|
|
I too have a low temp. 96.8 (instead of 98.6) always have. I have always been the coldest one in any house until the last six months. My poor husband has been freezing while I've been stripping down to my underwear and keeping the thermostat on 64. That is until last week...Now I'm freezing again. It has been really lovely outside (70's) and I've been wearing thermal socks, sweaters with many layers underneath. I'm in the polar ice caps all the time. My internal temperature has not changed. NO CHANGE. I too wake up greasy though. I've always had normal-dry skin, but not first thing in the morning any more. Body fluctuations are driving me batty. _________________ AB |
|
| Back to top |
|
 |
Suzique Kitten


Joined: 14 Jan 2008 Posts: 127 Location: Washington State
|
Posted: Mon Feb 11, 2008 1:30 pm Post subject: Temperature |
|
|
Hello, Everyone,
I must weigh in on the "hot" side. I have tended to rock between 101 and 102 every afternoon for 7 to 8 years (even before my Lupus diagnosis). I do not generally get "chills" with this, just feel very tired and sleepy with hot cheeks every afternoon. I haven't a clue what is making you guys temp so low, but let me warn you, as a health care professional (RN), the medical people ARE NOT taking you serious when you tell them about your low temp. I have seen it blown off by other nurses and physicians (I have been an ER nurse for 20 years) for many, many years. Patients come in with a 99 or 100 temp, feeling like they are "burning up", and the nurses and doctors go, "blah, blah, blah" (behind their backs). This is a terrible thing to say about my collegues, but I wanted to tell you this, so that if you are to ever get answers, you may have to shake them and say, "Look, I am not crazy. I bought a new thermometer. I take my temperature regularly. I know this is accurate!" Sometimes we (as patients) have to really work to get their attention. This, I am afraid, is one of those issues that will require some work. Thought you should know.
I have an extremely low white count. My b-cell lymps are"5" and should be at least "80." I often ask them how they are going to tell when I am really sick, when my lymphocytes don't ever go up, it seems, and my temp is always up. Another little trick the big L has pulled.
I love shrimp, nearly all kinds of seafood, and fruit desserts.
Susan |
|
| Back to top |
|
 |
jesseyleigh Big Hamster


Joined: 26 Jan 2008 Posts: 92 Location: Orlando, FL
|
Posted: Mon Feb 11, 2008 6:23 pm Post subject: |
|
|
| I was remembering a conversation i had with my primary doctor who had been my doctor since i was about 6 (amazing doctor if you live in the seattle area) and i had always had a low temperature he said it was a combination of poor circulation apparently common amongst people with inflamitory issues along with limbs that turn purple or extremly cold and frankly being a small person. |
|
| Back to top |
|
 |
the_librarian Puppy


Joined: 15 May 2007 Posts: 203 Location: Raleigh, North Carolina
|
Posted: Tue Feb 12, 2008 9:14 am Post subject: |
|
|
This is so funny. I was talking to my mom last night and apparently low temps run in our family. Her gp told her that people with lower body temps as a rule live longer! There are actually a number of scientific studies that suggest that lower body temp does coincide with a longer lifespan. I was going to post a couple, but they are all subscription scientific journals... I did a google search (low body temperature lifespan), but again all the articles I found that were reputable were restricted access.
AB _________________ AB |
|
| Back to top |
|
 |
cheryl_v Grizzly Bear


Joined: 06 Jul 2007 Posts: 705 Location: Central Florida
|
Posted: Fri Feb 15, 2008 8:59 am Post subject: |
|
|
Sorry Oluwa, not meaning to barge in on your post here. I needed to ask, should I call the doc if body temp is 93.8? Like I said, I used to have temps of 97-98. Now 94-95 (mainly steady at 95). I've been queezy, tired, foggy headed, joint and muscle pain, all around crappy. Just wondering because I've never had a temp this low before. Am I over reacting?  _________________ Cheryl
To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe) |
|
| Back to top |
|
 |
Oluwa King of the Jungle


Joined: 23 May 2007 Posts: 1920 Location: SC
|
Posted: Fri Feb 15, 2008 9:10 am Post subject: |
|
|
Hi Cheryl,
How are you today besides being cold...and No, you're not barging in...It is all of ours...
I would see a doctor..that is definitely too low. How many times during the day have you temped? At least three Cheryl? AM, mid-day and PM.
Could be a myraid of things that could cause it...
Thyroid
Diabetes
Infection...
Just found this from the Mayo Clinic...
normal human body temperature is usually stated as 98.6 F (37 C) orally, it actually ranges from 97.5 to 98.8 F (36.4 to 37.1 C). Some people have temperatures in the 96 F range and feel fine. Your body temperature is not considered dangerously low until it is below 95 F (35 C).
Mild reductions in body temperature are often temporary and don't indicate a serious problem or condition. For example, your temperature normally is lower in the morning than in the evening. The most common cause of a lower-than-normal body temperature is exposure to cold. But occasionally, a low body temperature can indicate an underlying problem or condition, such as:
Underactive thyroid (hypothyroidism)
Diabetes
Adrenal gland insufficiency (Addison's disease)
Hypothalamus dysfunction
Liver failure
Kidney failure
Widespread infection (sepsis)
Excessive use of alcohol or illicit drugs
A side effect of certain medications, such as phenothiazines, barbiturates, opiates, clonidine, lithium and benzodiazepines
If your low body temperature persists, consult your doctor.
Till then keep warm...layers to peel off, as the temp goes up...
Oluwa |
|
| Back to top |
|
 |
cheryl_v Grizzly Bear


Joined: 06 Jul 2007 Posts: 705 Location: Central Florida
|
Posted: Fri Feb 15, 2008 9:42 am Post subject: |
|
|
Thanks for the info, I've been tested again recently for all those. Everything keeps coming back normal. Temp in house is 71, outside 68. I test temp only when not feeling well, a couple times to be acurate. Randomly now and then just to see if there's any change when feeling well. Got temp up to 95.2 now, drinking some water to increase blood flow and a blanket. Hubby gripes when I call doc, says I'm acting like I want something to be wrong and becoming a hypocondriac (sp?). Yeah right, like that's the case. Thanks for such a quick response, I'll check temp in a little while again before calling doc though. I know I should now, just hearing hubby's gripping in my head .
By the way, has anyone heard from Saysusie. She OK? I haven't seen her up on the boards in a while (maybe I'm blind and just haven't noticed). Just checking, I don't mean to bother if it turns out I'm blind and can't even see her name.  _________________ Cheryl
To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe) |
|
| Back to top |
|
 |
cheryl_v Grizzly Bear


Joined: 06 Jul 2007 Posts: 705 Location: Central Florida
|
Posted: Fri Feb 15, 2008 10:47 am Post subject: |
|
|
Ooops, silly me. I see her name now, I swear I didn't before . Sorry Saysusie, so used to seeing your name that I could have sworn I didn't see it. Totally , I feel foolish. _________________ Cheryl
To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe) |
|
| Back to top |
|
 |
Oluwa King of the Jungle


Joined: 23 May 2007 Posts: 1920 Location: SC
|
Posted: Sat Feb 16, 2008 6:27 am Post subject: |
|
|
Cheryl,
Let him gripe...
I don't understand why it bothers anyone if we were hypochondriacs or not. Unless it was affecting our mental well being and we were extreme about ah lets say a cut.
Avoiding care can be more hazardous to ones health then seeking it. And avoiding care because we are afraid someone may think we are hypochondriacs is just as hazardous. I think.
We have Lupus, a diagnose, and it comes with many symptoms, secondary diseases and illnesses. So, I don't understand why one would think it is all in our minds unless they know very little about the disease. And with that, I would follow up with, then they should learn. Until then I am going to the doctors...no permission required..
Keep warm till you see the doctor..
Oluwa |
|
| Back to top |
|
 |
cheryl_v Grizzly Bear


Joined: 06 Jul 2007 Posts: 705 Location: Central Florida
|
Posted: Sat Feb 16, 2008 7:12 am Post subject: |
|
|
I know your right, I have no idea why it bothers me so. I have to see my mother-in-law today (yee-haw ), she's a nurse. I'll bite my tongue and ask her. Another thing that doesn't help with hubby's attitude is that I've 3 different dx, all tooken back. Only thing permenent he'll say is that it's deffinately a connective tissue disorder. With doc going back and forth, it doesn't help with getting hubby to understand. With the temp thing, he says it's probably hormonal and will balance out (his answer to everything ). Temp dropped to 93.4 last night, got it up to 95 again, so going to try to find answer today. I know this sounds like an excuse for hubby, but he is a good guy. Just won't admit when I'm sick, like I'm the one person who can't or something. Its the one problem we have in our marriage, his refusal to listen to me not feeling well and need to see a doc. I appriciate your advice on calling doc, thanks to you I put my foot down and told him regaurdless what his mom says today, I'm still going to call doc and ask his advice too Monday. Thanks for everything, I really do appreciate your incite . _________________ Cheryl
To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe) |
|
| Back to top |
|
 |
Oluwa King of the Jungle


Joined: 23 May 2007 Posts: 1920 Location: SC
|
Posted: Mon Feb 18, 2008 10:50 am Post subject: |
|
|
Cheryl,
I am sure he is a wonderful guy and I don't feel you are making excuses for him. We can complain about those who we love, I do...We do it out of frustration. We do it out of feeling misunderstood but not because of the lack of love we have for them.
When we don't have a broken arm or leg, or a band-aid wrapped around our head..looking like a mummy how could we be sick people would think. It would be like describing snow to someone who lives in the desert..a hard feat.
How I have handle that within myself is to understand and accept they don't get it no matter how many metaphors, visuals I use or try to relate it to experiences they may have had. In the end it is less stressful for me.
My one liner is. It is Lupus, not me that doesn't want to play. Today I want to be in the sand box..IT doesn't...Urg--gggg.
What did mum-in-law say...?
You're welcome Cheryl,
Oluwa |
|
| Back to top |
|
 |
cheryl_v Grizzly Bear


Joined: 06 Jul 2007 Posts: 705 Location: Central Florida
|
Posted: Mon Feb 18, 2008 11:03 am Post subject: |
|
|
Thanks for understanding, he can be such a pain. Mum-in-law said she was unsure, normally body temps low due to low bp. My bp has been a liitle high lately, so the two together makes no since. Unfortunately she's like hubby and thinks there is nothing wrong with me either. Even over what doc said it was, she thinks he's just saying that to make me happy or something, aaahhhh . Oh well. I'll call doc tomorrow, forgot it was a holiday so he was closed. Thanks for asking, ta-ta.  _________________ Cheryl
To the world you may be one person, but to one person you may be the world. (author: Nick Miller, I believe) |
|
| Back to top |
|
 |
|
|