how many men are out there

utenutter · Posted: Sat Mar 10, 2007 8:37 pm Post subject:

just curious i am in australia as you can probably read and it it hot i can't go out side it sucks, cant go to the beach cant go for swim i was wondering if your in the same boat cause i can feel fior others

shane

brandy74 · Little Guppy Joined: 09 Mar 2007 Posts: 31 Location: TX

utenutter · Posted: Sat Mar 10, 2007 8:47 pm Post subject:

so are you photsensitive as well? do you get rash etc. i tell you what, this forum is good isn't it, as you can speak to people who know where you are coming from and not to people who think "suck it up and get over it"

what time is it in tx (does yhis mean texas) now cause it is 2:45 inthe afternoon here

shane

brandy74 · Little Guppy Joined: 09 Mar 2007 Posts: 31 Location: TX

utenutter · Posted: Sat Mar 10, 2007 8:54 pm Post subject:

i am 31,

brandy74 · Little Guppy Joined: 09 Mar 2007 Posts: 31 Location: TX

ah 1 yr. younger than me so do you have lupus or just something like it?

utenutter · Posted: Sat Mar 10, 2007 9:02 pm Post subject:

yes i was diagnosed with lupus in dec last year but since being on this site and reading some people stories i think i have had it for some time now.
i have in the past three month had to change basically my whole life, how long have you know have lupus, so you having a late night to night ? have you been out ienjoying the night life or you cant veture into that as it is to exhausting for you.

brandy74 · Little Guppy Joined: 09 Mar 2007 Posts: 31 Location: TX

utenutter · Posted: Sat Mar 10, 2007 9:17 pm Post subject:

i am sorry to here that as i say i think i have had it when i was about 13-14 years old and i think i am one of the lucky ones, i dont venture out at night that much (not really a party animal, never have been but) i love my fishing ,camping, sports etc and overall i would say that is my biggest toll at the moment, i all so have alot of problems at work at the moment that need to be resolved, but if i keep myself heathy and fit i should (hopefully) beat this for t5he next years and still give my kids a good upbring

shane

utenutter · Posted: Sat Mar 10, 2007 9:18 pm Post subject:

as you probably noticed i am young at this and still have to fully get my head around it yet fully

brandy74 · Little Guppy Joined: 09 Mar 2007 Posts: 31 Location: TX

no worries your just fine.

utenutter · Posted: Sat Mar 10, 2007 9:28 pm Post subject:

thanks for your support it trully is appreciated

better let you go nice chatting to you maybe this is something that can be done in the future setting up a actual chat section so you can talk directly to people on line,

keep well and i will be talking to you!

shane

brandy74 · Little Guppy Joined: 09 Mar 2007 Posts: 31 Location: TX

TERIOD · Posted: Wed Apr 25, 2007 4:35 pm Post subject: newbie

not that im happy to see other people with this disease, I was finally DX in dec 06 after fighting with it for several years, and after a stroke in 2003, ive had to quit working as a mechanic and going to school, at 44 no one seems to want to hire and i have to be truthful about whats going on with me healthwise, with all the drugs im on, its hard sometimes to remember what i even went to school for!!, im six months in on cellcept therapy and there doesnt appear to be any change except for bp and proteins, has there been any luck out there with ssd, like ive read in other posts, it seems as tho many people out there dont understand what this is like, im not liking the reality of this disease, what do some of you do to get over the mindset???? Shocked

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Fair Oaks California

TERIOD · Posted: Wed Apr 25, 2007 7:47 pm Post subject: replies

Well i hoping that there was more movement in this forum Rolling Eyes

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Fair Oaks California