We Have Lupus

Free bulletin message board, online forum and community discussion group for the Lupus disease. Our internet message board is for support of those living with Lupus and their families. Please join us in supporting each other!

Discuss support and topics related to lupus symptoms, systemic lupus erythematosus, discoid lupus, variations of eritematosus, eritematoso, canis, sistemico, nephritis, rash symptom, erythematosis, diagnosis, traditional and alternative treatment.

Lupus Quick Links
Systemic Lupus Erythematosus (SLE) Resource Directory
Lupus Foundation of America - Living With Lupus - Internet Prayers

About Lupus
Systemic Lupus Erythematosus (SLE), also known as "LUPUS" is a chronic, autoimmune disease which is potentially fatal. The disease usually lasts for the life of the patient once diagnosis has been made and is characterized by unpredictable relapse and remission. The disease generally involves the joints, the skin, the kidney, the brain, serosa, the lungs, the heart and the gastrointestinal tract.

Women and minorities are disproportionately affected by SLE and the most affected age group is generally women of child-bearing age (however, the disease has been reported in both extremes of life. A recent study has found that approximately 2,000,000 persons in the United States has been diagnosed with SLE.

With recent treatments, health care and medications, the diagnosis for patients with SLE have found that 80% to 90% survive ten years.

SLE shares some similarities with HIV infection in that it involves multiple organ involvement, patients suffer from potential life-threatening episodes and the patients require constant (and sophisticated) monitoring. Further, the features of SLE may mimic infectious mononucleosis, lymphoma, rheumatoid arthritis or other "systemic" diseases.

Almost all cases of lupus are treatable, the disease gradually goes into remission in many cases. Life can be a struggle at times, but SLE patients must be aware of their disease, treatments and medications and take especially good care of themselves. Many can live a "normal life". However, the disease is potentially life-threatening and some patients have succumbed to complications of the disease.

Tributes and Love
This website is a tribute to Lauri Amber Reinke-Diggs, who succumbed to Lupus Erythematosus on December 10, 1999.

Your moderator Saysuzie, is diagnosed with SLE and generously donates her time to help others. We encourage our members to share treatments that have worked for them, but we are not a medical advice board. We are here to help victims, friends and family of Lupus through their emotional ups and downs with practical tips and encouragement along the way.

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